Trapped
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@esefirmes13 yes i have tried DBS, but it hasn't worked as well as i hoped.
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My son has severe dystonia and y just found out that DBS works better if it target the part of the brain that targets for Parkinsons (subthalamic nucleus intead of the globus paiiidus internus that target for dystonia just some info I hope its of use for you.
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I beat Dystonia without the doctors. The research is bunk, dystonia is curable in most cases. Don't let anyone drill holes in your head or stuff you full of botox. I formulated my own treatment after a lot of research and it worked.
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he goes to the gym, even though like this!
Hes awesome!
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I saw the case on television and shocked me I had seen these cases in people long ago. until now is his name and that causes it forward by jason
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Jason is such an inspiration! His body may be an adversity all in itself, but his spirit is certainly freeing him of his limitations.
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Did you happen to be at the dystonia conference in chicago? i was there with my brother and i think i saw you there.
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Dear Jason,
You are indeed a beautiful and handsome young man and command you for your strong will and courage. Please write to me in my mail box, if it's okaywith you my friend. You are a mentor in your field Jason. Take good care of yourself and have a great continuation of summer! Best rergards & HUGGGS, JJ
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have you tried DBS? it might help you a lot. i have seen a lot of people really improve wit DBS stimulation.
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You truly are an amazing inspiration and teacher for all! My prayers are with you!
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you may be trapped, but how you're handling it is quite freeing. thank you.
orangedrum 2 years ago 4
Jason, have you explored deep brain stimulation treatment which has helped others with dystonia? You are one tough dude and an example to everyone on how to handle adversity.
n518rm 3 years ago 4