UltraViolet: Cystic Fibrosis Foundation Video

We raise money for the Cystic Fibrosis Foundation to help Violet and everyone else find a cure for this disease. please donate safely and securely online at:

www.cff.org/Great_Strides/RebeccaDixon5175

www.cff.org

www.myspace.com/ultraviolet_rockforcf

Category:

Education

Tags:

• Cystic
• Fibrosis
• Foundation
• Ultraviolet
• CF
• CFF
• Pulmozyme
• Hillrom

[kylasmom2004]

I need a vest for my son but in canada they don't cover them. My son hates his past as much as she hates her vest.

[3LittleNinjas]

@kylasmom2004 Violet HATED using "hands" when she was really little, -- But now sometimes she asks for it to take a break from the monotony of the shaking. I commend you for the hard work and dedication you give to care for your son. Manual CPT is very hard work.

[jinnybaby]

ich habe auch Mukoviszidose. Bin inzwischen 28 jahre und habe einen 4,5 Jahre alten Sohn. Jetzt gehts mir auch noch soweit ganz gut, aber die Schwangerschaft hat auch ein bisschen was kaputt gemacht. Trotzdem würde ich mich immer wieder für mein Kind entscheiden. Die kleine Maus ist echt sowas von süss, wie sie cystic Fibrosis ausspricht. :)

[3LittleNinjas]

@jinnybaby Vielen Dank! Your story gives me hope that Violet will live a long healthy life and that she too some day will be a mother!

[mareami4]

This is great....we did "hands" (CPT) on our daughter and had her lay on a slant board. We lost her when she was 12 years old. She fought a had battle, but lost the war. Wish we would've had the vest when our daughter was here. This little girl has a great chance of survival. So many advances....

[dkoblerable]

@urdistraction06 They sure are!! My granddaughter Riley is my hero!!

[urdistraction06]

this is a great video! my son is 2 years old living with CF. Life is a struggle but its amazing how children can be so strong. he is my hero and i pray everyday for a cure.

[Peacevk]

she is such a sweet girl

[charlesthepoet2004]

DO A WEB SEARCH ON:

charles h. miranda OR:

charlesthepoet2003

THANKS.

[Mr517519]

Sad, Im sick and dying but Im 34 years old. Its sad to see little kids suffer and live a short life. God and Jesus has their reasons, we may not understand them at this time but someday we will...

[19antigoni]

I am a medical student from Greece and I watched little Violet in order to see how a patient with CF is. Sometimes we study the pathological paths of a disease just to learn one more disease for the exams, forgetting the meaning of it and the most important how difficult it is for a little angel and it's family to keep up with it. Be strong and never lose your faith ! In that way you help her be even stronger than she already is !

[cpulley100]

Violet is a beautiful little girl and I admire her so much for everything she is going through and what a good mother you are. We are doing a fundraiser at my high school for CF and when our class watched this video, we replayed the beg so many times. She has touched my heart and makes me want to learn more. Thank you so much for making me realize what a huge deal this is to children.

[rachelleahmartin]

my son has cf too, i also have a great strides team (trenton's striders), i will continue to work every day to turn cf to cure found my promise to you and my son!

[SuperApollo2011]

These children with CF always seem to be so cute - Violet is no exception. PLease check out my channel for a short film about my nephew who has the condition. Good luck - praying for a breakthrough!