I'm Laura, I'm 20 & I have Cystic Fibrosis. CF is the most commonly inherited life-threatening disease, for which there is no cure & a life-expectancy of around 38. This is a day in the life of me explaining what CF is & how my CF is treated.
Im coming twenty seven here in just under a month and i have cystic fibrosis and im glad i dont take as much as laura but creon 40,000 are a must but i find if u take cod liver oil it helps with the digestion side of it and lots of star jumps ;0)
Love your video Laura! We have children with CF as well and recently made a video too so we can relate. Feel free to watch if you would like. You have such a great attitude and we wish you the best! We will beat this terrible disease. Take care.
Hey Laura, you have beat this disease so far. Keep fighting! Sadly, my cousin passed away at age 18 from it. She could not stand to suffer anymore. She wanted to go, so she went February 4th 2011.
good video, my wife passed 3 month ago, she was 39 and she was thee best person i have ever knew,,cf patients are one of a kind that for sure.
88tonybolony 1 month ago
Fuck movical i hate it ;0( lol
Im coming twenty seven here in just under a month and i have cystic fibrosis and im glad i dont take as much as laura but creon 40,000 are a must but i find if u take cod liver oil it helps with the digestion side of it and lots of star jumps ;0)
StudmanBelfast 6 months ago
Fuck movical i hate it ;0( lol
StudmanBelfast 6 months ago
thats the AD i do :) basically everything you have i have to although i dont have a port ...yet x
Twirler1995 6 months ago
Hey Laura!
I'm Marissa from Michigan US
and I think it's great you're sharing all this :D
I have CF too!
Stay strong!
MarissaBREATHE 9 months ago
Hi, what's the black thing your breathing in and out of at 1:24? thanks
trasheater2 9 months ago
hey laura good vid my name is shane and i have CF as well im 21 and im from AUS. keep up the good fight :) as i say down here WE DIE HARD :)
metalking666evil 10 months ago
Love your video Laura! We have children with CF as well and recently made a video too so we can relate. Feel free to watch if you would like. You have such a great attitude and we wish you the best! We will beat this terrible disease. Take care.
CFStarFighters 10 months ago
Hey Laura, you have beat this disease so far. Keep fighting! Sadly, my cousin passed away at age 18 from it. She could not stand to suffer anymore. She wanted to go, so she went February 4th 2011.
BradleyHWrites 11 months ago