Chronically Hopeful: [The month of May]

Hi guys!
Hopefully this doesn't bore you much. I have a feeling it was probably more fun for me to put together than for you to watch. I want to put up a video with POTS tips soon, and a few other ideas that have less to do with my life, and more to do with POTS in general. I just haven't really had the energy for it, so I've been bringing my camera and filming my trips & whatever it is I'm doing...I figured that's better than nothing, and hopefully it sheds some light on my own personal experience and struggles with POTS.

I hope everyone is well, and I can't wait to talk with all of you more.

XOXO, Kyli

PS-Thanks to my wonderful friend Victoria for recommending the doctor to me!

Category:

People & Blogs

Tags:

• pots
• orthostatic intolerance
• dysautonomia
• chronic illness
• fainting
• syncope
• sick
• cortisol
• life

[HaHaHan85]

Haha oh jeez, you and your mom are just like me and mine when we're on long doctor visits. =) I'm a junior is high school and I was diagnosed with POTS in 6th grade at Mayo Clinic. I've gotten a whole lot better and now have Autonomic dysfunction. ...Which is pretty much still POTS. Just the whole "postural" deal is pretty much diminished. I love the idea of doing these videos. Best of luck! =)

[chronicallykyli]

i'm sooo glad to hear you've gotten a lot better. that's wonderful! thanks so much for watching my videos. :) (hugs)

[Deandra35]

Thank you so much for sharing this part of your life with us. You're right, it definitely seems like a journey! I'm so happy to see that you have someone in your life that makes you happy, as well as a supportive family!

Your story is an incredible one and I'm grateful that youtube gives you the chance to tell it. I don't have POTS but came across your channel and am so glad I did. Keep making videos! I really think they're great & inspiring.

[chronicallykyli]

thank you so much!! when i started this channel, one of my biggest hopes was that people who don't have pots would come across my videos and learn about it. :) thanks so much for commenting and watching.

[ashpauls]

Aww your man is a cutie!!! It's good he supports you hun, that's sooo hard to find in a guy. And sorry to hear about the bad week.. it's so sick and tiring being sick and tired.. but somehow we do it :) so I hope you're having a little relief and feeling better hun!

[chronicallykyli]

thank you! you couldn't be more right - it definitely is sick and tiring being sick and tired! i hope you're feeling well too. (hugs)

[MiraculousMoments]

I LOVED this video! It was so beautiful. That park was gorgeous and making the doctor's appointment into a day trip looked like a blast.

You and your boyfriend look like you complement each other really nicely. I noticed he was in a chair. What kind of disability does he have?

[SharkBateNait]

Just like to add, I went thru the packing thing just last week, can totally relate, if I've slept enough I can be pretty sure I've got everything, but a little too sleepy-headed and no matter how many millions of times I look around my room, I just cant be sure I havent forgotten something. :-) Also, just going across town for a couple days I need a full bag, can't just "make do" for a while, I need what I need, ya know? Take care Kyli

[SharkBateNait]

So sweet, great compilation, I definitely feel it, the good and the challenging. :)

[tobig2bagan09]

yeah it helps with the energy level. its call red bull. u can buy it at any gracery store or super market. if u do try it take the small one first to see if that helps. i dont have tachycardia but i have really bad migranes and intestinal problems. ive had it for 7 years and still going on.

[chronicallykyli]

what's it helping with? energy level?

[chronicallykyli]

be careful with caffeine if you're not sure how you react to it. everyone is different, but generally caffeine will increase heart rate.

[chronicallykyli]

red bull?! really! that surprises me! do you have tachycardia?