Aarilynne's Story - Life with Epilepsy and Dravet Syndrome
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Uploaded by cmcconnell84 on Aug 4, 2010
This is the story of my 2 year old baby girl Aarilynne. She lives with Epilepsy and Dravet Syndrome. Please pass this along to help spread awareness for Epilepsy and Dravet Syndrome.
Music by Creed - Don't Stop Dancing
I do not own the rights to the music in this video
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Hi! This hits close to home for us. Watching your video is like watching our life. Dravet Syndrome........ Everyday is a wonderful day for us just watching our little girl walk without a helmet. I understand everything .. Madeline is 2 1\2 years old and is on Felbatol, depakote and clonezepan. She is on the Ketogenic Diet and it has worked wonders for her. Aarilynne will for now and ever be in my thoughts and prayers. Keep fighting and be strong day by day.
ruthpena1 3 months ago
In an earlier video you posted it said she had AHC, was that a misdiagnosis by the doctors?
lu04maha 4 months ago
my daughter has dravet syndrome she was just diagnosed last year the combination meds keppra. topermax and sabril has made my daughter life so much better she has been seizure free for 3 months
Stephanie7073 11 months ago
Felicidades a Aarilynne por tener a la mejor familia y por ser una guerrera.
Mi hijo tiene epilepsia y tengo que hacerle la prueba SCN1A ...donde la hicieron ustedes?
lalumelo 1 year ago
You and your whole family is amazing!
dness23 1 year ago
Aarilynne is so lucky to have such an awesome family. It is a very stressful life you lead with the constant worry and concern for her safety. Looks like you are doing everything right!
take2xcess 1 year ago
You have a very strong little girl Have you ever thought about a service dog there was a story about a boy with dravet syndrom in the newsletter i get
yellowlabsrock 1 year ago
Oh my god.
I could just cry right now.
She's beautiful, and still young.
And she has to live with having back to back seizures her whole life.
]'''''':
ItsLizzyMofo 1 year ago
What a beautiful video! My son is also 2 1/2 years old and suffers from Dravet Syndrome...though thankfully, for now, he seems to be on the more mild end of the spectrum.
Your daughter is absolutely gorgeous!
kristencurrent 1 year ago
Aarilynne is a walking miracle. She light up a room when she walks in. You are such a great mom Mrs. Chris for all that you go through.
93sprinkles12 1 year ago