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Got Hope: Living with Hunter Syndrome (MPS II)

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Uploaded by on May 2, 2010

Got Hope: Living with Hunter Syndrome. The journey since 6-yr old Trey Purcell was diagnosed with MPS II - a rare degenerative disease. But we've got hope, and your donations make all the difference in finding a cure. www.treypurcell.com

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  • Why didn't the other 2 kids not get Hunters?

  • This video brought tears to my eyes. I am an occupational therapy student and I am currently doing a a paper and presentation on Hunter Syndrome. Trey put a face to all of the information I have been researching and he will give meaning to the words I convey through this assignment. Thank you for sharing his story and I will now be an advocate for raising money and awareness for MPS II...... P.s. Great music selection, Jack Johnson's Better Together fits the video perfectly!

  • Great video Deb and Ryan, I know your fundraiser on the 8th will be a huge success!

    Sending much love to all of you,

    Sue Cech

  • Beautiful Video. Moving and informative. Framerate Video did a great job. Deb and Ryan - as always - such wonderful advocacy for your son!

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