Gabriel's 21 months updade, dx hypotonia cp aspiration congenital myopathy scoliosis

Gabriels 21 months update, I couldnt really fit everything I wanted to say in the 10 mins but there will be more to come. My little man officially diagnosed with "congenital myopathy" and the "umbrella" diagnosis of CP. He currently aspirates on thin liquids and hase severy sensory issues. He has scoliosis and cannot sit on his own, not even close to crawling or scooting. Dispite all this he is a very happy baby, he loves his family and siblings, he remebers people and places, and will let you know if hes happy or not. He is making progress and only regressed with sensory issues and feedings. But he is a very healthy 28lbs and 33inches long. Please if you have a child or know of a child like my son, message me, I would love to find out if theres tests we havent had or therapys he may benifit from.. Thanks so much for watching! Erin

I also have a blog for Gabriel on blogger mygabbybaby

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• aspiration
• myopathy
• congenital
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• 21
• months
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[lori2427]

Ugh, so sorry it took so long to get answers. My son has hyponia and my pedatrician kept saying that he was fine until I finally called EI and had him evaluated. Needless to day, we've switched pediatricians. He's adorable, keep up the good work mommy!

[GabrielBaby2009]

@lori2427 Thanks Lori, its so frustrating when the peds dont listen! Moms always know first!

[GabrielBaby2009]

@MrRaad10 Hi, I sent you a comment on your page, Gabby wasnt a preemie, but I knew something was wrong when I was pregnant, he barely moved, he is my 4th child, I just had this deep feeling something was really wrong..

[MrRaad10]

Hi Erin,

I was watching your videos and it was like watching my story ...Your videos are the closest story to our's ?i would love to hear more about Gabby and where he is today....My son Raad was a preemie and still no diagnosis I would love to chat with you more if possible.....My name is Nancy