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Huntington's disease: A family tragedy

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Uploaded by on May 8, 2009

Donna and Elizabeth have Huntington's disease, an inherited neurological disorder with devastating physical and psychological symptoms that escalate in the years between diagnosis and death.

Huntington's most often strikes at midlife — in many cases, without warning. Most people with the disease die by age 60, usually from complications like infections, choking or falls.

Huntington's has shattered the lives, homes and plans of three generations of the Eby family, leaving behind a nearly unrecognizable new reality.

"Most of the time, you feel helpless," admits Ray, a 70-year-old retired mechanical engineer.

Donna, 66, can't walk or use her hands. She manages only pureed foods, when she can be convinced to eat at all.

Read more: http://lancasteronline.com/article/local/237264_A-family-tragedy--Huntington-...

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  • Your an amazing man, God bless you

  • He puts on a brave face, but you can see the pain he's in through his eyes. God Bless you in all your endeavors!

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All Comments (83)

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  • Through tradegy, he still is positive and loving. a lesson to us all.

  • This man has a real big compassionate heart: I `ll pray for him

  • You are such an inspiration. God bless you.

  • Wow, what an amazing person. Mr. Eby is so loyal and caring in the face of tragedy. Truly a hero. People who are absorbed in the frivolous aspects of life should watch this video and learn from it.

  • He has an amazing positive attitude. inspiring.

  • you beautiful beautiful man I pray everyday that there is a cure for huntingtons as my father and brothers all have the disease my father now in the last stages, he has had onset symptoms for 20 years, he is such a fighter.

  • @corsoluvs exactly what I was thinking. Its nice to see that there are normal individuals who still comment on youtube. That man is amazing

  • Mr. Eby,

    You are truly a very compassionate and remarkable man. I think that it is great that you have decided to be there for your family insted of leaving. I know it must be difficult but just hang in there and it will be ok. From working in a nursing home, I've seen people who were divorced just from other ilnesses so I commend you for sticking with your family. You are truly amazing and I wish y'all the best of luck.

  • @iiBigJoe they could be disliking the disease

  • you are a truly remarkable man, my father,aunt,3 cousins,great grandmother,uncle, have all died of it and now my darling brother Cliff has it. he is the only one of seven children. thank you for your compassion and love for your family, an example to us all.

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