Brittany Murphy, Dysautonomia (Pots syndrome), Her Brother

The video was made to reflect the Love and the loss all of us on the Bertolotti side of the family have experienced in the last few months dew to the untimely death of Brittany, and also to make people aware of a silent illness I believe Britt was dealing with, DYSAUTONOMIA.

Category:

Film & Animation

Tags:

• Brittay Murphy
• Dysautonomia
• Brittany Murphy's brother
• Jeff Bertolotti

[JeffBertolotti]

Your very welcome...

[YouTubeJen]

When I heard of Brittany's death, the 1st thing I thought of was "ok, maybe I was right to be scared when I have my "episodes"." I never dreamed that she suffered from POTS and this was really the cause of her death. I guess I'm just so used to being dismissed. You describe it perfectly when you say how doctors react when you go to them w/Dysautonomia symptoms, it's ridiculous. I'm sad she had to die (really hit home for me, I am 32 y.o. as well) but w/this video maybe it's not for naught...

[JeffBertolotti]

Thank you for your email. Brittany died from pneumonia. I do however believe she was dealing with Dysautonomia from conversations I have had with her in reference to daily symptoms she was dealing with at that time. What kind of Dysautonomia? we will never know.

[JeffBertolotti]

Fear will allow this illness to flourish. Have Faith that you will be OK, it will allow your body to cope better with this, and maybe even allow your body to heal in time. Don't let fear rule your experience.

[zen242]

Very well said. Agree wholeheartedly.

[shazam779]

After being told I was "just experiencing anxiety" and other incorrect explanations- countless ambulance trips to the ER- 2 EP studies- endoscopies- countless medications that made my cardiac sypmptoms worse...I finally get diagnosed with the NCS form of Dysautonomia that is very cardiac specific. I discovered dinet.org, and found a Dystautonmia specialist in the area I- I've probably spent close to $100K on medical BS over my lifetime. THANK YOU so much for taking the time to make this video!

[NJSMKMMS]

Hey Jeff,

Great honest vidio.

I am so sorry for your sisters loss.

I am from Australia and the Dr's here are so ill educated about this too. My boys and I (one of which has POTS smptoms at age 8) too do not do well on meds and find that trusting that everything will be OK, no matter where this belief comes from for different people, is Key to this.

Hope you continue to do well with the symptoms you have.

Blessings

[fridakahloapoyomutuo]

@YouTubeJen I have dysautonomia and no information in Spanish, I know you've made​videos for Latin people, please talk about this, is so difficult, because in Mexico they treat us like something that you have to get used and not something that should be followed up doctor. I'm using the google translator to communicate with you, I am taking to Congress a citizen called socially invisible, talks about all these diseases that make us put ourselves in a dilemma that not everyone understands

[ilTubodiGe]

I am convinced that now Brittany is watching us from up there... She is an Angel!!!! thanks for this valuable evidence Jeff !!!!!

[hotathlete2]

And I so agree with Jeff's statement about not laying in bed during these illnesses. Best thing is to just get back to doing what you did before. Keep the body strong. I wake up with a dose of prednisone and a high protein shake, lots of fruits and vegetables for lunch, multivitamins, and a large juicy protein bound steak for dinner and lots of excercise. As a result of excercise, I'm regaining some my strength and coordination. I'm in my initial flare up and hope I can continue what I'm doing.

[hotathlete2]

I know what U mean about the medical community's ignorance of this and other autoimmuned disorders. I was recently diagnosed with pemphigus vulgaris which is even more rare than disautonomia. When I mentioned it to my doctor, he hadn't a clue. Pemphigus is so rare, it affects less than 1% of the population. Fortunately it's not a diasability disease, just mouth ulcers, loss of 50+ pounds, loss of strength and coordination. Happy to say, I'm back in the gym and getting back to health YYYay.

[mikeer222]

my wifes pots was caused by wheat allergy!! we fixed it!!

[jrdfreckles11]

Dysautonomia is so much more common than people think. If only the doctors knew that. Because I've struggled with a heart condition my whole life, and now Dysautonomia for the past 3 years, I've devoted myself to becoming a Pediatric Cardiologist and helping this condition get in a freaking medical journal. It's not well known at ALL. My mom also wants to open a physical therapy clinic that focuses on a recovery for Dysautonomia patients. Sorry for your loss, Jeff.