MY CHIARI MALFORMATION JOURNEY 2

A SECOND SURGERY WAS NEEDED AS MENTIONED IN THE FIRST VIDEO.

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• MICHELE
• MY
• CHIARI
• MAFORMATION
• JOURNEY
• (SECOND
• SURGERY
• AT
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• JOE
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[raulandmichele]

ThePoppy1806- to respond to your question. It would be a lie if I said no it didn't hurt. After waking up is the worst until the spinal fluid levels are back. the pain isn't as bad but still hurts. Just make sure your son doesn't wait too long for pain medicine. I was known for waiting way to long to ask the nurse for something. But I didn't want to become addicted to the meds. And it is uncomfortable to sleep you wake up very stiff and in pain. But remind him that isn't forever it will pass.

[StormyMonday1970]

Hi Michele, first thanks for sharing your story, second, I wanted to know why did you have to have the 2nd and 3rd surgery? I had decompression surgery back in 2001 and unfortunately symptoms are starting to come back, especially the horrid headaches and the memory loss/brain fog and the left side pain and sometimes numbness. Anyway, I was curious about why you needed to go back in for surgery.

[raulandmichele]

Well I had the 2nd because I had a CSF leak and needed another Laminectomy of C2. The first doctor messed up pretty bad. And the 3rd also a CSF leak but was by far worse then the leak before. I'm sorry to hear that your symptoms are comming back. I hope your hanging in there :)

[inkdNdN]

SORRY I SHOULD HAVE PROOF READ i left caps on ..

[inkdNdN]

SURGERY IS RANK BUT MAKES A HUMAN OF YOU. I MAY HAVE LOST MY FRIENDS/SOCIAL LIFE BECAUSE I CANT DO SPORTS OR THE THINGS I DID PRE-SURGERY BUT THERE'S NOTHING LIKE WAKING UP WITHOUT A HEADACHE AND HUGGING YOUR FAMILY I FEEL FOR ALL OF YOU YOUNG AND OLD JUST DONT GIVE UP AND BE CAREFUL OF DEPRESSION/ADDICTION YOU WILL BE UNHAPPY FOR A BIT BUT LIKE I SAID WAKE UP PAIN FREE AND JUST FEEL YOUR BODY SO AMAZING IF YOU ARE ON THIS JOURNEY JUST KNOW WE ARE IN YOUR CORNER STAY GOLDEN !!!!

[janaemarie10]

Decompressed 9/14/10.

18 yea old. The hardest and roughest thing ever to go through. Lightsand sound bothered me after I woke up from surgeryand lasted for the longest time. Maybe get a "neck" pillow. That's what helped me. Can't lay on the back of head for awhile andthose pillows have a cut out in the middle. Worked very well! Best luck to ur son and family.

[ThePoppy1806]

My son has to have sugary too. He is so scared. But he really wants to know did the sugary hurt?

[FlyinHyy]

I ached for you as "we" were driving to the hospital.

hugs hope surgery three is the final one

[hollimagolli123]

my son is 5 and has had 12 surgerys realted to chiari/syringomyelia.Mikeys chiari journey,mikeys chiari journey2010, mikeys chiari journey video clips

[eurielle2425]

Hi Michelle! Thank you for sharing your story. I just wanted to know how are you now?

[TheKnejae]

I noticed a skydiving video associated with the raulandmichele thing. I was wondering if that was you skydiving if you developed your symptoms after that dive? I have ACM 1 as well and was wondering if you felt that skydiving had something to do with symptom onset?

[Hilaryisweird]

It really sucks after the surgery because not only are you in pain, you can' move your freakin neck. I know when I was recovering. it was really hard for me to communicate with my family because I couldn't turn my head or anything. I'm so happy to hear/see that you are doing well.