In Memory of Gavin-Niemann-Pick Disease 2004-2011
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Uploader Comments (kaydeejay21)
All Comments (14)
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I teared up watching this video - your son looked adorable. I hope your efforts on making this wonderful video - gentle, informative, proactive - will be returned.
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Gavin touched all our hearts, and he will be terribly missed.
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He's so adorable, hope there's a cure. I'll be praying!
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He's beautiful. I'm sorry you had to go through so much just to get a diagnosis that is so unfair!! I'm praying for a cure!
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im spreading the word!! dont worry i have a big school! and people like the bracelets you made!!!
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I don't know if you remember me, my name is Denise, I cam to your baby shower with Louanna. I spoke to Louanna today and that's how I ended up here. My heart is with you and Nando and your whole family. This video is a beautiful collection. Gavin looks like a happy little boy who knows he is loved. If there is anything I can do, please let me know. I may be back in Baltimore, but I'm around if you need me. I'm posting his video on my facebook and spreading the word.
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My poor Gavin lost his battle to NPD on October 30th, 2011. I miss you, pumpkin!
kaydeejay21 2 months ago
Thank u
kaydeejay21 8 months ago
Thank you for sharing your son's story My daughter is 9 and she was said to have autism which became overshadowed by seizures and now we're with a metabolic/geneticist and we still don't know why this is happening. We're prayerful for answers, the new doctor is looking at enzymes and a possible skin biopsy. Thanks again for sharing.
girlchristian1 1 year ago
@girlchristian1 That's what the video is intended for. We want to raise awareness, and we want for other parents to not have to go through the agony that we went through trying to find a diagnosis for so long. I hope all is well with your daughter. If you want to talk, you can find our page on facebook called "1 Cause-0 Cures **Niemann-Pick Type C**". Thank you!
kaydeejay21 1 year ago