EB Awareness

Epidermolysis Bullosa Awareness video.
For more information about EB, please visit
ebinfoworld.com.

Category:

People & Blogs

Tags:

• epidermolysis
• Epidermolysis
• bullosa
• Bullosa
• Disease
• Disorder
• Cure
• awareness
• skin
• EB
• butterfly
• children

[ertai222]

damn this sucks, and people say there's a god. if there was he wouldn't cause people to go through this BS

[cutmeyemaya]

I have EB, thanks for making this video

[CandyDany101]

:'( my cousins have this, they r twins!

[SpotsDontDefineMe]

I've never heard of this before.  It's heartbreaking. More awareness IS needed for sure!

[aisywolfy]

it is sad... thats why im doing something about it.. im only 17 and im fundraising at my school... its devastating and something needs to be done!! :)

[1tomone111]

poor soul. god bless him

[cocoforlove]

I can't even inagine not being able to hug my daughter. I will have your son in my blessings and I hope that someone will soon find a cure for EB no child should ever suffer like this you must realy be a strong person people like you inspire me to be a better person. I'm in the medical field and hopefully we will find a cure

[tinykittenz]

Great Job Silvia!!! Give your boys a big hug from us!

Misty, Anne-Marie, heather, and Kayleigh

Dominant Dystrophic Epidermolysis Bullosa

[thomascrown559]

Jesus, this is SO sad! Poor little babies :(

[courvid]

Its so sad children have to suffer from so much pain. I never knew this excisted before i heard Courteney Cox talking about it, she also raises money for the EB foundation. I hope this foundation gets more treatment possibilities to help these children.

[nelleke1010]

i'm very impressed by this video. It shows everything that needs to be shown. My son died the 12th of december 2006 and suffered from dystrofic EB. Thank you for letting the world know about this terrible skin disease. Nelleke ( from The Netherlands )