Hadley Hope
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Thank you for this video. Your families story is inspirational. We too are trying to help researchers find cures for these rare diseases. For rare disease day and In conjunction with the Children's Rare Disease Network RemedyMD is giving away a rare disease research registry worth $50,000 to the winner of a video submission contest and the organization of their choice. Visit RemedyMD's website and click on the "About" section to read about this partnership and for more details.
RemedyMD 11 months ago