Neurofibromatosis: Investing in a Cure
Loading...
Uploader Comments (CTForg)
All Comments (20)
-
@MzNaughtyGurl i noticed at least for me, they grew in cycles... had a huge one on my face my entire life... then had it finally removed... did not have tumores for years... then all of a sudden they all sprang up in my early thirties.... now I am covered with them and the more I remove, the more grow.... there is just no way to tell.
-
my daughter has nf1 and im afraid and dont know what to expect in the future
we live in israel so im not shorer abuot the nonlegal and technology u wish there was a cure im paring for my child
-
Why there is no sure until now why ????
-
I don't think you every really stop growing them. Your kids have a 50/50 chance of getting nf from you. I have 3 kids 2 have it the other doesn't. add me as a friend and we could talk privitely if you would like
-
NaughtyGurl, I don't think the tumors will ever stop growing. I'm 28 and have noticed that things have gotten worse for me as far as tumors go in the past 8 years. Sorry to be such a downer.
-
i have nf aswell i happy with my girl i told her everytghink about it but i think she stills loves me. but we both scared if we want kids we dont want it do go through wat i went through
-
i have pain to i have nf 1
6:03
Neurofibromatosis Campby CTForg17,146 views- 4:22
Neurofibromatosis - About The Children's Tumor Foundationby CTForg11,838 views
- 4:35
Adam and Bara talk about Neurofibromatosisby CTForg2,670 views
- 7:53
Neurofibromatosis: Investing in a Cure (captioned)by CTForg3,069 views
- 4:21
Austin and Neurofibromatosisby luwannalyn27,407 views
- 3:07
Neurofibromatosis (NF1) Awareness by Naomi D'Amato.by naomidamato12311,405 views
- 4:48
Neurofibromatosis & Cancer Took Her Down, the Lord Took Her Upby sueburke777776,249 views
- 2:52
Neurofibromatosisby gabriels10747,149 views
- 0:51
Neurofibromatosis with spinal deformity.by bushanJOSEPH1,345 views
- 3:13
Sara's Fight Against Neurofibromatosisby JaimeC729460 views
- 3:00
Neurofibromatosis 1by mom2all91068,780 views
- 2:37
ABC News Report on Neurofibromatosis with Reggie Bibbsby adgiant3,501 views
- 1:40
NEUROFIBROMATOSE-NEUROFIBROMATOSYSby Edneuro200824,837 views
- 7:38
I don't believe in Gay rights!by rednecktrucker196919,293 views
- 4:07
2009 Children's Humanitarian Medical Awardee Dr. Hubert Weinbergby CTForg741 views
- 5:22
neurofibromatosis part 2by babycham20068,436 views
- 0:12
Neurofibromatosis Type 1by nfgal42,592 views
- 6:17
me & lynzee talking about nf1by Nf1Angels3,112 views
- 3:21
Neurofibromatosis and Reggie Bibbs in the news!by reggiebibbs6,543 views
- 1:36
3D ANIMATION OF WORKING OF HEARTby 786SAYEEDBALALA139,812 views
I also Have NF1. not to bad i'm age 19 and have tiny cafe latte spots on my legs and chest. I do not have a lot of tumors that are visable. Im just wondering at wut age do you stop fully growing tumors? does your body ever stop growing them?? When i want to have kids is there any way i can prevent them from getting the disorder?
Will there every be a cure for it??
MzNaughtyGurl 2 years ago
@MzNaughtyGurl there is no way of knowing when or if the tumors will stop growing, it's different for each person. We, at the Children's Tumor Foundation fund research for treatments and a cure. Hopefully by the time you decide to have children we'll at least have treatments for the manifestations of NF. Although your child would also have a 50% chance of not having the disorder, this is something you will/would need to talk with your doctor about to decide what's best for you.
CTForg 1 year ago