Published on Apr 19, 2012
Here is a true story in 46 seconds of the very short life of a child who has Batten Disease
BeeForBattens.org, welcomes you to Our YouTube Movie, we hope you like it and that you will help us in sharing it around the world.
Bee For Battens , The Saoirse Foundation was created to Raise Awareness of Batten's Disease and to promote this fatal genetic disorder which mainly affects & kills young children.
This movie is dedicated to Saoirse Heffernan who passed away on Jan 18 2011 from Battens Disease, aged just 5 years 6 months and 14 days!
If you would like to learn more or to Help make a difference then please visit www.beeforbattens.org
We are alos on Twitter @BeeForBattens, on Facebook, Google Plus and many many more...
Voice Over by : Saidhbhe O Shea
Shot and edited by Albert Hooi -
Illustration and animation by Mick Minogue
A Tribute to Saoirse Heffernan who passed away on Jan 18 2011 from Batten's Disease, aged just 5 years of age!
Music By Lisa Hannigan - Song Lille
(P) and (C) Lisa Hannigan Hoop Recordings: Permission
Received. Thanks Lisa!
Copyright of www.beeforbattens.org