Sams spasms / seizures

9 month old son, might be infantile spasm or Benign myoclonic epilepsy

should do a little background:
Sam 9 months on the 19th June, born with NAIT( neonatal alloimmune thrombocytopenia- this is a rare platelet antigen incompatibility with me(mum) and was born with a count of 2- very very low) had numerous transfusions and is now better.
Has a porencephalic cyst in the right temporal lobe as a result of a bleed inutero, secondary to NAIT.
Had delayed vision- which is fixing itself,
has nystagmus and a slight turn in the eye- none of the eye problems can be linked to the cyst.
Sam had an MRI in Easter to check the cyst and no changes were seen, and no further abnormalities were detected. Currently awaiting an EEG to rule out IS

Category:

People & Blogs

Tags:

• Benign
• myoclonic
• epilepsy
• infantile
• spasms
• headnodding

[pinkminx00]

quick update EEG was normal no seizure activity- still no idea what its could be...

[pinkminx00]

has an EEG booked for Tuesday morning. We seem to think that he doenst have any control over his head or neck area- he is able to freely support himself and move both arms and both legs. his eyes dont roll into the back of his head but the do look up. we have noticed that we are able to interupt the 'episodes' and stop them if we tickle him. They dont tend to cause him much grief and he doesnt phase out before or after. they happen when he is excited or happy and when he is being fed, or tired

[cristyxx2]

Aww poor baby. Makes me wana cry :(

[ruichorao]

This is head nodding, may possibly be an epileptic spasm. But one can just confirm it if you have an ictal video-EEG. Anyway, these are not the most commom and threatful infantile spasms from West sundrome. Baby is really cute! Good development?

[mommytochris]

please find our support group on yahoo for NAIT My son also has seizures from it.

[aamiller6758]

very cute baby!

[Talk2thehooof]

You have a cute kid :)

[yaratito2008]

my daughter was diagnosed with infantile spasms when she was 6 months after she had surgery for her brachial plexis palsy injury. They found out with an EEG. Shes been on medication ever since she was born. No medication was stopping it until one day i asked God to heal her and He did. She have not had a seisure since september 11 this year.

[pinkminx00]

he does not have rickets and is progressing well, we have been in contact with a physiologist and have been given positive feed back. he at 13 months is not quite walking but standing for short periods- a few seconds. still in the normal range

the nodding was unexplained and has stopped doing it

our main problem now is his eyes he has a congenital nystagmus and an eye turn- also in contact with a ophthalmologist and doing eye exercises( eye patching)

[pinkminx00]

we are in contact with a neurologist @ john Hunter hospital in NSW australia, he has constant check ups and monitering. his head circumferance is normal and is following the normal arc in growing. the EEG was perfectly normal the neurologist was quite impressed.

in regards to the flat occipt he had a minor flatttening of the rear of his skull due to sleeping position- on his back- perfectly normal, which has now evened out since spending less time on his back.

[dztz123]

Hello,

My daughter is doing the same sort of thing and we're just booking into an EEG now. Just wondering if they determined what it was?

Thank you