Gastroparesis, Me & Social Security

This is my slide show briefly explaining what Gastroparesis is, what it feels like and how I and my fellow GPer's are fighting a needless battle with Social Security Administration (SSA)

Please forward to everyone you know and help raise awareness of GP and how the SSA just sits on claims for no good reason.

For more information about GP, go to:

http://digestive.niddk.nih.gov/ddiseases/pubs/gastroparesis/

http://www.gpawarenessfund.com/

http://en.wikipedia.org/wiki/Gastroparesis

************** UPDATE **************

I FINALLY received a decision from the SSA!! I was APPROVED for SSDI!!! YAAAY!!!!! Thank you everyone who viewed, wrote me and passed this video around to others. Please continue to spread the awareness of Gastroparesis.. don't stop! People need to know about this illness so the scientists and doctors can work on a cure and preventions of it!!

xoxo,

Angel

MATERIAL IS USED UNDER THE GUIDELINES OF "FAIR USE" IN TITLE 17 § 107 OF THE UNITED STATES CODE. SUCH MATERIAL REMAINS THE COPYRIGHT OF THE ORIGINAL HOLDER AND IS USED HERE FOR THE PURPOSES OF NOT FOR PROFIT ENTERTAINMENT, COMPARISON, AND CRITICISM ONLY.

Category:

People & Blogs

Tags:

• Gastroparesis
• Idiopathic
• Starvation
• Social
• Security
• SSA
• Disability
• Disabled
• Brian
• Carter
• Awareness
• GP
• IGP
• Update
• Decision

[heavenonlyknowz777]

I noticed u made no mention of the massive amounts of vomiting one gets from GP. I vomit so much I require hospitalization. Does this happen with you and is there anything to stop the vomiting?  I am also curious if the loss of your limbs was due to the diabetes. I dont understand how you cannot have SSI. That is ridiculous. I hope all is well with you. Stay strong! God Bless! IF possible please make more videos on diabetes and gastroparesis. Thanks!

[scmilitarywife]

I guess my original response didn't post.. I'll try again! I plan to make more vids about GP. I don't have diabetes tho. I have IGP, Idiopathic GP which means no known reason/cause. I was born disabled. I finally got SSDI but am fighting for Medicare now. My vomiting isn't TOO extreme but I have SEVERE nausea & bloating issues that make it so I never wanna eat. I force myself to not vomit as much as possible. Gross & painful to do, I know. Hope you're well as can be expected. God Bless U 2 :-)

[gradkitty]

I do have sympathy for individuals who have to maneuver thru the SSA system, however it is important to point out there are always two sides to a story. She didnt tell you all that she was receiving benefits at one time.She then went to work which by its very nature means she was earning a living contributing to society as a whole. She has told us that she didnt stop working b/c her disability prevented her from working ( a key caviat of the SSA disability program) but b/c they layed her off. .

[scmilitarywife]

And another thing..

"gradkitty", you claim I told "us" the reason I was filing was b/c I was laid off not b/c of my disability... right?

If that were true, which is ISN'T, then why did the DDS Office (Disability Determination Services) have to wait for my Gastroenterologist and for Palmetto Richland & Baptist Hospitals to send over my medical records for review?!?!

EXACTLY!

Because I was filing for disability b/c of my Gastroparesis... not b/c I was laid off....!!

STUPID

[balckbettystack]

I'm having one of those months where it is a massive struggle to eat.

Not only am I really not hungry & getting full so quick,but my gut pain and bloating has been very bad.

I am on Motilium but I felt a few months ago that it was no longer working.

It was confirmed in my last scope 3 weeks ago.

For now we will just hope and pray.

Good luck to you.And have a good tummy day.

[scmilitarywife]

I know exactly how you are feeling... I have bad and good days and honestly, the meds aren't working for me and nothing has worked for me in the 5 years I've been treated for it... Reglan didn't work... right now I'm on Domperidone and Ethromycin.

Good luck to you as well and I hope things will get better for you soon. I'll pray for you!

[pinkxsharpiexoxo]

u look so cute with the pigtails!

[tanklestar]

Gorgeous looking couple!

[thejbladys]

I just received my Approva for SSDI after 2 1/2 years! I have Lupus! But Just as I have prayed for my after I will continue to pray for yours...God Bless you both!

[xXxREMIXBOIxXx]

man this is really touching i shed tears on this song im sorry for your condition .....=(

[cheermagazine]

I had my gastric stimulator put in 21/2 years ago... It changed my life. I have been recovering for a while now and agained back all my weight... God bless you all, I know exactly how you all feel... I haven't thrown up in months........ All I can say is thank YOu Jesus........ I almost died.

[ChrisSoHomo]

@colagirl62 so the pacemaker took well with you?? Do you still have any symptoms?

[colagirl62]

I too have gastroparesis and live in columbia and would not go to any of the doctors in columbia if you paid me. They are a bunch of quacks. I go to a specialist in atlanta and had a gastric pacemaker put in several years ago. it profoundly changed my life. The docs in columbia are so far behind it is not even funny, they are nothing more than scope and dope guys. I hope you will look outside of columbia to get help because i promise you if you stay here you are doomed. good luck

[motiger68]

I am in the same situation as you having both diabetes, Type 1-Insulin Dependent and Gastroparesis. I have disability and had to keep fighting before I received the benefit. That is a shame that one cannot receive the benefit when they-re suffering. It is ridiculuous. I have been suffering with severe nausea and vomiting, stomach pains, and bleeding in my esophagus. Please stay strong and are in my thoughts and prayers. God be with you and Thank You.

[BirdOfParadise777]

That is just too crazy that with your disability your husband has to leave you!

I totally sympathize with you!

Did you ever get the Medicare? I hope so!

BOP