My Ehlers Danlos Diagnosis Update #4

I went to see a geneticist and was given a diagnosis of Ehlers Danlos type 3. I was in a lot of pain when I made this video so I am sorry if I did not appear as happy as I had wanted to be. Thanks again for watching! (You Tube always picks the ugliest stills for some reason lol!)

Category:

People & Blogs

Tags:

• Ehlers Danlos Syndrome
• Collagen Disorders

[Zorlac0666]

She is beautiful yes, but I think you should show a bit more respect considering what this video is about. Just because it's youtube doesn't mean you have to spout some smartass or derogatory comment on every video you see.

[ADandylion007]

Its good that you make these videos and in a sense, some what essential! What I mean is, there could be other people! As you say there are many with this, but people who have not yet had there problem diagnosed. They could see your videos and have some kind of explanation to there symptoms. Plus you let all your peeps know that your not letting it win and that to me makes you a Hero.

All my love,

Dandy...

[MuslimBrezz]

@Zorlac0666 She now even suck a cack

[danthehempsmog]

@JAZZ22794 Plus she eats cum to make up for the fact she can't cook a meal or wash her own ass.

[danthehempsmog]

However the worst position for her was when he made her ride him. She often cried as she had to bounce up and down on him dislocating both legs as a result. It took days or her to recover. Her husband loved her on top, so tracie claimed. RIP Tracie.

[danthehempsmog]

@Zorlac0666 I think it's wrong that her husband forced her to have sex right up to the end, even though every time she would partake she would end up dislocating her arm or leg. Especially in it was doogie-style--his favourite position according to Tracie. Tracie would have to endure and hope not to dislocate which was hard to avoid.

[mistimt1029]

Blood test were always normal with the exception of a few thing always off (but I dont know what these things mean). Anyway, I decided to check up on what it was today, and found I have almost every single symptom. From "Thin skin", to hypermobility, to flat feet, difficulty healing from surgery, etc. One thing I am wondering.... every video I have seen of someone with EDS is very thin (as am I. I am 5'3" and 102lbs). Is that a symptom, too?

[mistimt1029]

I was reading my medical files last night and was shocked to see that 3 different times in the course of a couple years, it was mentioned in the report that they think I may have Ehlers-Danlos. I too, ahve gone to the doctor many, many times, and no one ever knew what was wrong. I was worried they thought I was neurotic, but it turns out they thought there was something going on, but failed to ever mention it to me or do appropriate testing.

[Natureboywhooo]

My spine cracks when i breath cause its caused me to have postural scoliosis!

[JAZZ22794]

your so pretty



[aGodisgood7z]

Hello!!! My name is Betsy i speak a little english im from Puerto Rico and now bllive in Orlando Florida, i have Ehler Danlos was diagnosed when i was 5 years,i have 33 years and have 3 Kids, was looking for support group, i would like to know more about this condition talk to people etc....i whent to geneticist , but not could i be tested to detrmined which type i have...watching your videos i saw what happens to you just like me in some things.. sorry for my writing..Thanks ..God es you!!!