http://www.GabrielleLaVerde.com
Gabrielle LaVerde is a delightful and adored 7-year-old little girl who has been diagnosed with a fatal and rare disease, called Niemann-Pick Type C. The disease is considered an orphan disease since there have only been 500 known cases worldwide. The disease itself renders its victims with Alzheimers-like symptoms—victims move backward in time and forget how to perform basic functions, such as talking, walking, eating, chewing, swallowing, and breathing.
What does this mean? It means that Gabrielle, and other children like her, who suffer from this disease regress. The baby that learned how to talk, the toddler that learned how to walk, and the young child that learned how to play, forgets how to do all of these things, as they travel backward in time to their infancy, and lose their memories.
Gabrielle is Traveling Backward in Time
This is why the disease is referred to as Childhood Alzheimers. On our website, you will see for yourself how Gabrielle is truly traveling backward in time, for the Gabrielle we know today does not know how to talk, walk, or play, yet she did all of these things before the disease claimed her. This beautiful 7-year-old child that we all know and love will soon be just as she was when she was an infant.
As you review Gabi's history, you will relive the events that have taken place since Gabrielles fatal diagnosis, you will see for yourself, how it was her elementary school classmates that stood up and took a stand to save her life, as if to say not on my watch. You will read how not only how the community, but the citys mayor recognized and praised them for their heroic and unselfish acts of kindness. Youll read how these youngsters moved parents, businesses, the news media, and elected officials to act. Yet the fight to save Gabrielle LaVerde has just begun.
DELTONA, FL / October 10th / Contact: Lloyd Marcus 954-934-9588
Sixty Central Florida singers united and lent their talents to record a song to save the life of seven year old Gabrielle LaVerde. Gabrielle suffers with a rare fatal disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10 years.
Rappers, Gospel singers, Country artists, Folks singers and more including the Sammy Davis impersonator from The Central Florida Rat Pack all gathered at Deltona Arts Recording Studios to record Save Gabi. Save Gabi is the title cut of a soon to be released CD featuring 14 other songs donated by various Central Florida artists to raise funds for Gabrielle's medical treatments.
Gabrielle has undergone one treatment with promising results at a cost of appropriately $30,000. Another treatment will be needed in a few months. Numerous fund raisers are scheduled to raise $30,000 for Gabi's next treatment.
Coordinator, songwriter & lead vocalist of the Save Gabi project, Lloyd Marcus is requesting a donation of $850 to cover the expense of printing 1000 CDs. Sold at $10 each, the Save Gabi CD will generate $10,000 towards Gabi's next treatment.
Save Gabi written by Lloyd Marcus. Produced by Frank Starchak and Adrian Sutton. Everyone involved with the project donated their time and talents. Savin' Gabi t-shirts courtesy of George Trovato, City of Deltona Attorney. Savin' Gabi logo design by Lloyd Marcus. All proceeds benefit Gabrielle LaVerde.
http://www.GabrielleLaVerde.com
Contact: Lloyd Marcus 954-934-9588
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Gabrielle LaVerde and DLE's Big Give on FOX 35 05/08by gabrielle8246,695 views
gabi my country is with you
bonjour de france éric
nojentil 3 years ago
good job!
kingcobera789 3 years ago
What a lovely song to accompany a special story. There is something about Gabi that touches all who learn about her. Thank you, Marcus, for lending your gifts to this little girl and her cause.
prbj 3 years ago