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Cluster Headache Ontario Canada Me

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Uploaded by on Mar 23, 2011

Cluster Headache documentary to help educate and explain what us sufferers go through. I hope this video helps someone
Thank you
Update I am having DBS Brain Surgery Feb 23,2012 I will post a before and after video

Update, surgery was postponed to Feb 27,2012,
blessings everyone.

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Uploader Comments (ClusterHeadSurvivor)

  • hey man dont smoke try cutting down on your smoking cause i heard that can increase attacks you may still have them but the attacks will be lower if you dont smoke

  • @MurphMagnetic

    I quit smoking Aug 23,2011.

    I have not smoked once since then let alone be around a smoker. I avoid 2nd hand smoke. My attacks never changed when I quit. Still as often, still as brutal, same as usual. Nothing changed with my attacks after I quit. Unfortunately. I am having brain surgery called Deep Brain Stimulation Fab 23, 2012

  • @ClusterHeadSurvivor i know that surgery looks so painful but trust me when youre out you will realise that the surgery was nothing compared to years of those crippling headaches

  • @MurphMagnetic

    it will be worth it

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All Comments (17)

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  • I am a cluster headache sufferer since I was 13. I am a female 48 years old now and am episodic. I was finally diagnosed in 1992 I must have been 28 or so. I felt terrible after I saw this video. I usually go 2 to 4 years without pain. My last attack was in 2008, getting signs that they are returning. Scare the life out of me but I know in 4 - 6 weeks they will be gone for a long time. You on the other hand have been in pain every single day for 5 years. I know your pain all too well. :(

  • I'm with you brother. 25 years for me. I hope and prayer that you get the relief you need from the surgery. Good luck and get better! My prayers are with you.

  • I can TOTALLY understand everything you are going through. I am a 37 yr old female and I have had cluster headaches since I was 4 years old (that's 33 years!). I was misdiagnosed until 2008. It was "sinus" ha's until 1991, then it was migraines. I was epsodic until 2000. During the episodic period, they came every 6 weeks & lasted 7 days straight (2 days severe pain). I've never had it last 30 mins,go away and come back. always continous. In 2000, they went chronic, and 2009, to daily. it sucks

  • @ClusterHeadSurvivor oh ya sure im not a sufferer but i can tell you it would be worth it to go through painful painful surgery instead of waiting to die to escape the pain

  • Hey Tom, Im Joana from Portugal! God I "almoust" know what you feel because I have cluster but the last time was 4years ago. Today i had another crisis and i´m preparing for have a bad month, because the last one stayed for almost one month, 1/2 crises by day. For me suicide during the crisis is the most simple tought, its amazyng! God help you and thank you for these video!

  • God Bless you too

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