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Frankie Forgione loved forever - Krabbe disease

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Uploaded by on Jan 21, 2011

A video highlighting the devestating effects of krabbe leukodystrophy. Frankie forgione, a beautiful and very loved little boy was diagnosed with the terminal disease at 7 months and sadly passed away on 01.01.2011 at the tender age of just 16 months. He is greatly missed by his family who are keen to raise awareness of this terrible incureable disease.
We love you Frankie x x

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Nonprofits & Activism

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Standard YouTube License

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Uploader Comments (kimmy10r)

  • Thank you all for your comforting words <3

  • I love you son, I miss you so much. mummy xxxxx

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All Comments (12)

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  • Very sorry for your loss. It's so sad that there isn't a cure for this disease.

    RIP sweetie.

  • Aww man this is sad, R.I.P

  • I was so moved watching Frankie with his dad in the tub,you could see he was so comforted,the look of pure bliss.What a sweet special little soul,Blessings and hugs

  • I was lead here by Anaya! And I just wanted to say how truly sorry I am for your terrible loss! NOTHING is worse! I truly believe that these lovely little souls are angels and I KNOW that your lovely little Frankie is up in heaven with Anaya and ALL the other children who have gone before them and since! God Bless!

  • I'm sorry for your loss....

    Have you heard about The Anaya Initiative? Anaya was also a Krabbe baby who lived passed her 2 yr birthday. She just passed a few days ago :( healinganaya.blogspot.com

  • He will be forever remembered in your heart. I know and feel your heartache as my grandson (also krabbe affected -Angel Jayden 8/26/07 - 12/27/08) is dearly missed. Please know my prayers go out to your whole family. We are raising awareness to all those that will listen -- and those that won't!! Someday this devastating disease will be eradicated!

  • Such a beautiful boy!!! So sorry for your loss!!!

  • God bless you. I pray your hearts heal and mend with time.

  • Thank you. x

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