SMA Awareness
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Uploader Comments (ExplosionArts)
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All Comments (13)
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do you have a email i have sma syndorme too
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im an onging fighter of sma for 4 yrs now, y dont docs know anything? im afaide for my life.. plz help me.. this video is a great awarness!
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im an onging fighter of sma for 4 yrs now, y dont docs know anything? im afaide for my life.. plz help me..
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mhm =) thanks for watcing
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Thanks for the words of compassion and support. When going through something like this, every word of support counts! Keep up the good work!
missmelisa27 1 year ago
@missmelisa27 its not problem at all! :) Welcome and thank you ^^
ExplosionArts 1 year ago
My doctors think I have SMA. The CTs have even shown the compression on the deodenum in multiple scans. But due to the rarity of SMA, most Drs just say it doesn't really exist.
It is a terrifying situation to be in as I am only 33 and have 5 children to live for. I really hope this video makes it to the eyes and hearts of people who can help make a difference for people like us!
Thank you for posting this video. It's the only way I can see to try to explain SMA to family and friends!
missmelisa27 1 year ago
@missmelisa27 Aww :( Well if so, you at least can know that there are other people with SMA that you will be able to talk to and know for sure that they know what you are going through. Yea, I hate it how most of the doctors deny the existence of SMA. Yes it is a terrifying situation for any family to be in (I wish it would not exist so families would not have one less thing to be concered about). It isn't a problem at all :) I hope to maybe make another video with more information on SMA :)
ExplosionArts 1 year ago
Thank you for this video! I have been blessed by my friendship with your amazing mother through the facebook group my friend and I started. Looks like her daughter is just as amazing!
~Love from a fellow SMA patient
RedViolin87 2 years ago
Its not a problem at all =) I would do this anytime for anyone and thank you =D
ExplosionArts 2 years ago