Huntington's Dance (C/o Chris Furbee)

http://www.huntingtonsdance.org/projects.html

Our current project is a documentary called, "Huntingtons Dance". It documents my last trip back to West Virginia to stay with my mother. It also documents my being tested for the gene for Huntingtons Disease.

I have raised from my last fund raiser $19,000 towards my film. I have about 80% of it shot need a total of $35,000 to finish my film. Any contributions are appreciated.

I have a reel available to view. It is in windows media player format and about five and a half minutes long.

cure4_hd@yahoo.com

Category:

People & Blogs

Tags:

• Huntington's
• Disease
• Dance
• Huntington
• Chriss
• Furbee

[11BlueCopper]

Chris,

I just wanted to let you know I greatly admire your strength. I saw the CBS special and was touched by your video. I will soon be a physician and will view people with your mother's disease with a greater understanding. Thank you for doing this. God bless.

[Crazee108]

This is extremely difficult to watch, and I'm on youtube... I can't even fathom how difficult it is to see it in real life. You are very strong.

[katysullivan1993]

um.. my mum has this... im 18...

[alz123alz]

She was a beautiful lady and she produced a handsom intelligent son. Does she qualify to have someone come and cook a balnce diet for her. As a person who have studied neurons and made significant contributions to the National Institue of Health, I can tell you that I am still impress with the way she responded to the questions that she was asked. She answered them all inteligently through the limitations of her physical condition.

Good she is active, it helps nourish the brain.

[alz123alz]

Thank you for this video. It is invaluble for researcher that want to make a contribution to finding a cure for this disease, however, are limited in seeing the actual effects on patients. I would suggest, however, that you not be afraid by running away, and view every moment with her as an opportunity to learn and accumulate knowledge that will help yourself and others.

Remember diet , exercise, and taking control will play a vital role in controlling this disease.

[quaxk]

this guy arri shirt and the fact that he can't pronounce huntington properly makes me question the genuineness of his testimony, I think it's just some creative editing of an huntington's disease patient stock footage mix with a crew member fake testimony and a lot sentimentalism to fool unaware viewers, the fact that he ask for money up front makes me very uneasy, beware peeps, it's easy to give in to that kind of manipulation...

[TwittyWhit07]

My neice was diagnosed with Juvenile Huntingtons a couple of years ago..... shes 17 now...and a very brave girl...her video is on my link xx Love to you all

[talak56]

First, thank God for everything. My heart is with you and your family in such suffering is something that really breaks the heart. But hope remains in God.

That he will compensate you for all of this in paradise. .... Mohammed from Saudi Arabia

[kheffah]

God be with all huntington's patients. I really hope a cure will be discovered soon

[Blackhorse83]

This is so hard for me to watch -- we were shown it in biology class last year. I work in a hospital for Huntington's and other diseases like it, and the reactions of family members are almost worse than the patients themselves.

On another note, what is the song called?

[keenandwhat009]

Your mom looks like a model at 4:40

I can't imagine what it must of been like for you. You are a very strong person to be able just to tell your side of things. God bless you and i hope some day real soon they find a cure.