First I want to apologize for messing with my hair and moving around so much. I was incredibly nervous making this first vlog, and didn't realize I was doing it until I watched the vid. But, wasn't...
First I want to apologize for messing with my hair and moving around so much. I was incredibly nervous making this first vlog, and didn't realize I was doing it until I watched the vid. But, wasn't about to try to do it yet again, so this is what we end up with.
UPDATE: I have to make a correction. According to Immune Support.com, the FDA has only approved Ampligen for review to become the first ever drug therapy for ME/CFS, they haven't actually approved the drug for the treatment yet, but the steps are being taken.
I am doing this because I feel that it is important to be seen and heard world-wide and in our true daily states. People have to be educated, and governments have to be forced to fund research, and make available any and all treatments, tests, and information about this condition.
I have disabled the ability to give thumbs up or down, as I feel that rather than insulting commenters by simply giving them all a thumbs down, as I've just seen, people should communicate. After all, isn't communication particularly important for this cause?
Oh, and a special shout out to my soul-sista, vampire twin.
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Hi I'm Melanie from the U.K. and I also have M.E. Itall makes sense to me...I sometimes can't even string a sentence together or even know what an item is called! I get muscle pain,exhaustion,pins & needles,brain fog, shakes, skin infections & itching,loss of use of legs and/or arms,noise intolerance and still find myself defending myself and justifying my illness.I am not as severely effected as you& knowing how disabling I find this illness I really do feel for you. Take Care x
Hi Merina. I don't see the message. 0_o Did you leave it as a profile comment? Some of those have been disappearing, so if you did and it's not there, I didn't delete it, I promise. You can try again, or send me a pm if you want to. Thanks again and have a wonderful day!
Hi iblade06. Thanks so much for watching, and I'm keeping my fingers crossed for the approval. I think/hope we will hear something this coming week. The approval date is supposed to be May 25, but since that's memorial day and we haven't heard yet, I'm sure it will be shortly after that. Have a wonderful weekend.
Hi Lisa. Thanks so much for watching and taking the time to comment. I can fully relate! AIDS might be a "taboo" illness, but at least it's a validated one. I think that if Ampligen is approved *hopefully next week* The marketing for the drug will bring the kind of public awareness and physician education like we've not seen before. I think it will be the first step in our actual validation.
I hadn't thought of Ampligen that way but I think you're right. I may never be able to afford it but if can help doctors believe then it is worth it. I get hand failure all the time from this. I'm no longer allowed anything breakable and now i love confirmation windows when I used to hate them. Oh, and I'm learning to like makeup too. Somehow it feels like I'm taking part of my life back.
Hi Jody. Unfortunately, we've ALL been through that with health care professionals. You just have to keep searching until you find one that will take you seriously, and recognize what your test results mean. I'll keep my fingers crossed for you and pray that you find some comfort and help soon.
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I get hand failure all the time from this. I'm no longer allowed anything breakable and now i love confirmation windows when I used to hate them.
Oh, and I'm learning to like makeup too. Somehow it feels like I'm taking part of my life back.