Kallmann Syndrome - basic introduction.
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Uploader Comments (plymouthlad38)
All Comments (25)
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Know what? The amount of views on KS videos on Youtube goes to show just how rare our syndrome is.
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Spot on Neil. I've never had any problem with my gender either despite having KS.
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Neil
Brave man for daring to 'come out' openly about KS. I admire the fact that you have chosen to make this video outlining our condition and you have done so most eloquently. Thank you for mentioning the psychological aspects of the condition because they were the most significant in my own case and always have been. In fact they are central to one's whole concept of identity as you said.
Well done Neil
Paul Tasker
Horsforth
Leeds
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I think anything you or I say will get the thumbs down no matter what we say :-)
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I thought the volume was quiet as well so Im glad it wasnt just mer :-)
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Thanks Graeme, he seems very nice and I like him already :-)
Seems like a very kind person :-)
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plymouthlad38 thank you for posting this video. i hope your channel doesn't get bogged down in arguements as many often do when other people have dissagreements. Still thank you for sharing with the world,, I might suggest adjusting your sound recording level, as it is kind of quiet and very hard to hear you. other then that it is great to see you.
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Kallmann syndrome is certainly rare, but it is probably under diagnosed. Also you would have to know the term "Kallmann" in order to find these videos.
If I had the time I would make some better videos, but we do have some good information about KS out there now and some good patient groups on Yahoo and Facebook where people can talk to eachother.
plymouthlad38 5 months ago
thank you for this information i have found it very informative as i have been diagnosed with kalmanns syndrome in the last year thanks
shaunbexley 2 years ago
Thank you for your comment, I was hoping these videos would be a useful introduction to people newly diagnosed.
Are there any particular questions you have ? I might be able to help.
Best wishes,
Neil.
plymouthlad38 2 years ago
I have met around 40 people with KS in person and spoke to lots more by phone and e-mail and I can not think of one of them who consider themselves intersex.
We may have issues or problems with sexual development & self image but I do not think as a whole we have a problem with our gender.
It is only going to be my humble opinion as an informed patient but I do not see KS as an intersex condition as a general rule but do not rule out individual people with KS being intersex.
plymouthlad38 2 years ago