Seizures, Epilepsy, Convulsions, Lupus, Rachel Light No Diagnosis April Sun 2011.mpg

I'm now 34 years old & started having problems in 2003 when I was 27. I had half my face droop & the other half paralyzed. Went to the ER & they miss diagnosed me with Bells Palsy. 2 months later I went back to ER for chest pains, left side weakness, I was kept overnight only to find I was paralyzed the next day! I spent months in a wheel chair on and off. I've had several lapses 12-24 in a given year. I've seen about 19 Dr.s & spent over 25k so far. All the Doctors I have seen including the ER Dr.s can't tell me anything! Most of them state "that it's all in my head or stress related!" I started having convulsions/seizures a few years after which followed by Foreign Accent Syndrome(now speaking in a British accent) diagnosis @UT Dallas by Dr. Katz in 2006. This week we have spent another 2k to repeat the same test before. I've had Dr.s @ Breckenridge Hospital tell me rudely & acted put out "Just deal with it!" & a Neurologist Dr. F in Round Rock Texas, says it's nothing but stress. I had several MRI's & CAT showing normal, but a spinal tap showing 85% negative for MS. I tried to establish a new family Dr. with Dr. G in Georgetown , Texas & came across so many new worries, she decides to take a personal phone call speaking another language for about 10 minutes & ends the call in English, "Okay I'll bring some off the shelf!" Then says my lab work was normal & the rheumatoid factor being 71 instead of 30 or below "It just means you have a weak immune system." Getting the feeling this doctor did not care, I changed to another doctor. My new physician can't believe all I have been through with finance & neglect . My current doctor is checking me for Lupus. I want to thank all my friends & family for all their help and support. okay and my hubby Randy! ;0) My A.N.A.(antibodies in the blood) also tested "positive" along w/Rheumatoid Factor being more than double. My purpose for this post is to get this out there in hopes to find others that have endured, dealt with or are struggling w finding a diagnosis. I can't be the only one out there suffering from this. I don't want people to feel sorry for me... My purpose for posting this video in hopes of finding answers. Thank for viewing!

Category:

People & Blogs

Tags:

• Seizures
• Rachel Light
• Convulsions
• Lupus
• Raynaud's Disease
• Misdiagnoses
• Epilepsy
• No Diagnosis
• Paralisis
• Muscle Spasm
• MS

[WalburgGirl]

1-18-12 Had a very stressful day leaving me shaking & within an hour had full blown flare up/lapse. Whole body weakness, heaviness, freezing cold-tight feet/legs, R-leg charlie horse cramp that won't go away. Heavy, weak arms, migraines, rapid breathing when relaxed trying to sleep, chest pains, palpitations R-eye droop, left eye sunk in. Feel weak all over, exhausted, pain. I can use crutches but have to take a break every few feet, my feet curve inward while try to walk, wheelchair is better.

[WalburgGirl]

I've been through a roller coaster of being sick. I had 4 days straight where I felt real good & energetic so I was able to get things done. Then got sick & was told to stop Plaquenil til I got better due to vomiting. I got better for about a wk trying to get caught up from being sick then got very sick again.This time Acid Reflux & GI problems it's been 8 days now. I haven't been to Dr. for this yet because I have no med. ins. nor could I make it out of the house due to symptoms this brought.

[WalburgGirl]

@Niceboy3377 I wasn't screaming..... I was grasping for air and couldn't breath to talk! My whole body was constricting and felt like my whole insides as well. There are times if I don't try to breathe during them I end up turning blue, my body gets even more tightly constricted with sometimes loosing consciousness!

[WalburgGirl]

Sept. 12th went into another Lupus and RA Flare that I'm still no totally over but feel much better now. This last one landed on me VERY HARD landing me in the wheelchair. Today is day 4 without wheelchair day 2 without crutches. Although I haven't tried to walk far just to my throughout my house. I'll get out of the house today and see how much weaker my body will get the further I walk or if it will. I'm still very tired & weak but it's been over a month I'm tired of not being able to be me!

[WalburgGirl]

Batistamaniac1 No seizures since July. I haven't been back on Plaquenil either like I was suppose to.... I've been going full force & really pushing myself to the limit these past 2 months & so far no lapses, seizures, but at times I do feel like "this could be the day that I have a flare due to how I start to feel." Everyday is a question as to how the day will end because the onset of these flares & seizures are so much a like in the beginning of exhaustion, excretion, and fatigue nausea ect.

[WalburgGirl]

What a long night it was, constant cold sweats, insomnia, whole body pain.Called Dr. & these were the start of another Lupus flare. As to no surprise by afternoon throat tightened, body jerks like beginning of seizure, & legs collapsing. Oral steroids are helping with making my seizure not so intense, but I still feel like crap!

[Niceboy3377]

this looks really painful

[Niceboy3377]

@WalburgGirl WHY WERE U SCREAMING !

[Batistamaniac1]

r u ok now?

[msmulerider]

howdy rachel,, vinny here,,i didnt know you were having such difficulties,, i will pray and fast for you and i have a friend whos daughter had lupas so i studied a bit with him,,i do know that your immune system is compromised and that mega doses of vitamin c twic daily help that,, also msm helps all cells to be more pliable and reduce imflammation,, alpha lipoic acid also helps our body fight free radicals,,, check these out and know that we are here for you and send good happy vibes your way,,