MS makes me BITTER {V-BLOG}

Yesterday, we got her latest MRI results. She has 3 new lesions on her brain. The largest being half dollar size. If ye saw her Saturday night at the monthly gathering, you knew she could hardly walk, control her grip or say her words right. {Thank goodness most of our friends drink, so this does seem normal!} She is exacerbating, and the 3 new lesions are no help. That is the pain & health side. But here are some peripherals:

*Insurance will not cover the drugs they want to put her on.

*She is losing her T-Cell grant, because obviously she is too far gone for the study to be a factor. We will now pay out of pocket for all her meds.

*I have been on the phone all morning talking to the VA, Govt. assistance and other programs. Not much help there, if any at all.

*She is going to be even further out of the loop, something she hates, because her pain is high.

*She believes she is a burden or strain on us/me, and I don't seem to be able to convince her otherwise. Sick or not, she is my life, as most of ye are aware. Who would TMI be without Calypso? Not a pretty picture, eh?

Category:

People & Blogs

Tags:

• multiple
• sclerosis
• M.S
• MS
• Society
• depression
• dealing
• health
• exacerbation

[jets7021]

Sorry to hear about your wife's MRI. But I have MS. Diagnosed in '99. Used what I thought were best MS drugs and it turned out to be bunk. Forget those drugs. They may or may npt work. But she has to try low dose naltrexone. More commonly referred to as LDN. I started on 4-20-10 and one year later I feel like a new man. I no longer have the fatigue, cognition probs, anxiety, depression, muscle cramps, spasticity, and other symptoms.

[LuckJustBad]

hey!! im sorry to hear this about your wife!! just be there for your wife!!

i got ms!!

i got my family there for me!!

but my wife is not ! she had left a few years back!

i need her next to me but that aint going to happen

[mirnamad]

Hi sorry about your wife but im glad to hear you express how you feel i thought i was the only one feeling bitter by MS my husband suffers from it since 2007 and he doesn't qualify for any assistance and believe me when i say ANY we have even looked under the rocks literally. All this years he is been without any medication just vitamins and natural supplements and recently "Walkaid" that has help with the foot drop but not so much with the depresion, tireness, and especially the mood

[keemur1]

If you're broke, the drug companies will give it to you for free. I see it has been a few years so you may have figured that out by now but look into it if not. Doctors did not tell me that for a long time. Had to figure that one out on my own. Good luck brother. Also, I do know, as hard as it seems on her, from her perspective, she is worrying about you. It is always harder to watch someone suffer. When it is happening to you, providing you have the right attitude, you just suck it up.

[ingeborgvanbruggen]

What you are saying about your wife and the way you seem to be there for her... That is doing a lot!! I was diagnosed with MS last year, only had one attack that paralyzed me from the waist down. I'm single so specific about a spouse I cannot advise you, but just like others have said.. Just be there for her without forgetting about yourself!

Sending strength!!

[stacks6969allday]

hey man im sorry to hear aout that i have a brain anureysm and i have it growing in the nerveus system i know what she going through i got surgery in like 3 weeks but the shit can ruptuer any time thats what im scared of i hope she gets better and god blees bro.

[Feverant]

man this is shit - really shit.

i feel for you bro.

*ms sufferer

[RogerWV]

You are human - you are helping... God be with both of you. I have the DIAGNOSIS as well - it was 17 years ago. My suggestion - just BE THERE for her. You do not have to have answers - you do not have to FIX things - you cannot even fully understand how it IS when it is YOU. Peace and LOVE to both of you...

[liferocks0108]

Hi, I'm in the UK my wife has had MS for 10 yrs, I know how you feel I'm screaming inside.

I support my wife, but no one asks me how I'm feeling or coping.

Hope your doing ok and found some support in your area.

[angelusa73]

I know exactly what you are saying...and I know that is hard to find the right people to talk to.

I am here if you would like to chat and share what you are going through.

I wish you and your wife the very best and I look forward to meeting you.

Have a good day,

Angela