Baclofen Pump for Muscle Spasticity

In this video I talk about controlling severe muscle spasms with intrathecal baclofen pump therapy. This pump has made an already difficult life much easier!

Category:

Howto & Style

Tags:

• Intrathecal
• Baclofen
• pump
• therapy
• wheelchair
• user
• disability
• disabled
• paralyzed
• paraplegic
• quadriplegic
• adaptation
• spinal
• cord
• injury
• sci

[bigfatdad46]

I've had my pump for a month now , still needs adjusting . Would like to know if you do any exercises/stretches especially abdominal work , if so , does the pump get in the way ? ,

[blackpearlv6]

@bigfatdad46 It typically takes 24-48 months to get the pump fully dialed in. I don't have any problems with it getting in the way and I am very active. Occasionally, I will feel it hit the bottom of my rib cage but it's nothing that is too terrible.

[bigfatdad46]

Just seen your video , you describe my condition down to a tee , I've been waiting 9 months for an I.T.B. Pump , can't wait anymore , my spasms are doing my head in ! . Great videos , keep up the good work .

[blackpearlv6]

@bigfatdad46 Oh man, I really feel for you. I remember what that was like. I had to fight to get mine asap. It is crazy how much of a waiting list there is.

[Lithinar81]

Do you have a lot of nerve pain? My doc said this can do that too. I'm kind of skeptical...but after 10 years of pain I'm so sick of it. Any info you or anyone else could provide would be great. Thanks!

[blackpearlv6]

@Lithinar81 I sent you a PM with a little more info on this. I have some nerve pain but it's not really severe. I suggest calling Medtronic because I have heard of patients getting a mix of Baclofen and pain medication filled in their pumps. This may be just the thing that you need...but I'm sure they will have a better idea. Good luck!

[Lindsay1814]

you describe me down to a tee mate. ive only just recently become a complete T3 after a bike accident. my spasticity was off the charts (bucking me out of my chair, rolling me out of bed) and no oral medication was doing the trick so i decided to get one of these pumps installed also. ive had it in for just a bit over a month now and am already seeing major improvements. id recommend it to anyone having the same issues. keep up these videos they are great support! thanks

[honkytonk2010]

I don't take any medication for my spasms and i had the same spasms as you talked about, i was scared of the side effects taking medication in the long run.So what i did was to learn how to live with them and what i found is that i lost very little size off my legs and now the spasms hardly bother me.For me i feel spasms keep your legs toned,but that is just me. and one more think nice videos thanks.

[3223karmatime]

btw i had heard of a b pump but i had no idea it was inside u thanx 4 sharing

[3223karmatime]

thanks this info really helped me understand how baclofen works etc I use it for my daughter who is 4 she cannot speak so I have to figure stuff out she is only on oral baclofen and they dot do pumps yet in NZ hopefully she might get one one day, well thanks 4 the info...

[Andruha7]

Wow never heard of a Baclofen Pump. Honestly I will never get one no matter how bad my spasms will be cuz that looks weird bro. At some point i like my spasms, feels better when my legs are moving. It also help transfer to my SUV a lot easier. I even stop taking baclofen pills and im totaly fine with out it.

[RTylia]

I ams so glad that I found your video and the way you explained everything was great. I am scheduled to have one inserted next month because of severe spasms but I am not nervouse any more. Good luck to you and thanks for lowering my anxiety.,

[bigfatdad46]

Have had my Baclofen pump two weeks now , difference in my body is amazing , spasms are completely gone now . Just having to get used to my "new " legs ! . So glad I had op done , worth the wait ! .

[MrJazzeman]

@Lithinar81 I have nerve damage at L1 due to fbss. They put bupivicane, feyntenol and baclofen in my IT pump. The bupivicane is what really helps with my leg pain. It is a soothing numb euphoric feeling in my legs. No more constant burning, aching or feeling like my legs are on fire anymore. My atrophy is gone now as well. Hope this helps you.