Living with RSD/CRPS

As part of a school project - my story about living with RSD/CRPS

Category:

Education

Tags:

• RSD
• CRPS
• CMD

[ruffryderr323]

i got diagnosed with rsd when i was sixteen i have it in my left leg from the knee down i got it from an ankle injury i suffered playing basketball and i just wanted to say that this is a great video

[ABon1212]

Ive heard from a friend that weed helps RSP/CRPS people feel warmth instead of pain sometimes slightly - worth a shot not to be in pain i guess.

[Lesrd9]

I am called cripple.....its been so long now I even respond to it sucks. Have you looked into the pprc? Theres alot of progams you can go to for weeks now with pt ot and physc stuff daily im rsd thanks to the pprc

[hiphopdabcer3313]

I know how you feel i am also a teenager suffering through rsd/crps this is not easy...your video described pretty much what i go through with my arm i just wish more people were aware of this terrible thing

[lionkinglover86]

i am also 11.. they said it was weird and very rare that i had is at this age

[lionkinglover86]

i know how it feels.. i have it i take meds, it does nothing i never sleep no one ever gets it, my pain is off the scales and charts.. you name it... rsd it sucks and i don't think it'll ever get better i've had surgeries those never worked... they never will i'm stuck with is i'm trapped and i'll never get out

[MugenXNinja]

I have It aswell ^_^ I like seeing that there IS other people with CRPS In this world. @BertlovesEarniex3 Your right the only true way you can understand one another Is through pain and I, Charles Harner understand her pain. It's not a fun thing to live with but we have to. Have you guys heard of Ketamine Coma Infusions? That's the new thing for CRPS. I'm willing to try It. If you are still having sleep problems try elevil. It helps a little.

[BertlovesEarniex3]

i have it too. and it really sucks. i hate going to school because the kids and teachers dont understand. I have one teacher who is really supportive but i feel bad going to her everytime i am crying in pain because i dont want to put my stresses on her. this disease makes me feel VERY alone.

[qkcutie]

You are such a brave girl....your video had me in tears....I'm an adult in my 30's with RSD in my left side. I know the pain....keep the hope Kayleigh!

QKR

[LolliepoppxoxO]

Heyyy kayleigh, my friends mum sent me the link to this because she thought this was an amazing video and i was like 'omg its kayleigh!' hahaa this video is incredible, you have done so well at describing this horrible condition! ive always struggled with describing our condition to other people but now i can just show them this video...thank you :) btw we should meet up sometime asain, havent seen you for ages :) xxx