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Silent Suffering :: September is Sickle Cell Awareness Month

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Uploaded by on Jun 28, 2007

http://sendacanvas.com/ http://haiti.fm/ http://www.sicklecellart.com/
Silent Suffering :: Nazaire :: Sickle Cell Awareness Art
Sickle Cell Series by Artist / Painter Nazaire who also has Sickle Cell Anemia.

This video is a moment of SILENCE for our loved ones who have come before us in this struggle.

Health Education ::
:: What Is Sickle Cell Anemia?

Sickle cell anemia is a serious condition in which the red blood cells can become sickle-shaped (that is, shaped like a "C").

Normal red blood cells are smooth and round like a doughnut without a hole. They move easily through blood vessels to carry oxygen to all parts of the body. Sickle-shaped cells don't move easily through blood. They're stiff and sticky and tend to form clumps and get stuck in blood vessels.

The clumps of sickle cells block blood flow in the blood vessels that lead to the limbs and organs. Blocked blood vessels can cause pain, serious infections, and organ damage.

Sickle cell anemia is an inherited, lifelong condition. People who have sickle cell anemia are born with it. They inherit two copies of the sickle cell gene, one from each parent. People who inherit a sickle cell gene from one parent and a normal gene from the other parent have a condition called sickle cell trait.

Sickle cell trait is different from sickle cell anemia. People with sickle cell trait don't have the condition, but they have one of the genes that cause the condition. Like people with sickle cell anemia, people with sickle cell trait can pass the gene on when they have children.

:: What is Anemia?

Anemia (uh-NEE-me-uh) is a condition in which a person's blood has a lower than normal number of red blood cells, or the red blood cells don't have enough hemoglobin (HEE-muh-glow-bin). Hemoglobin is an iron-rich protein that gives blood its red color and carries oxygen from the lungs to the rest of the body.

Red blood cells are made in the spongy marrow inside the large bones of the body. Bone marrow constantly makes new red blood cells to replace old ones. Normal red blood cells last about 120 days in the bloodstream and then die. Their main role is to carry oxygen, but they also remove carbon dioxide (a waste product) from cells and carry it to the lungs to be exhaled.

In sickle cell anemia, a lower-than-normal number of red blood cells occurs because sickle cells don't last very long. Sickle cells die faster than normal red blood cells, usually after only about 10 to 20 days. The bone marrow can't make new red blood cells fast enough to replace the dying ones. The result is anemia.

Source :: NHLBI - NIH http://www.nhlbi.nih.gov/health/dci/Diseases/Sca/SCA_WhatIs.html
Be sure to ask your doctor for more info

Please take Note: Do not use the word Sickler. Stay Positive, don't allow ignorance to keep you down at an even lower level than your pain has kept you for so long. To overcome major difficulties you must be empowered do so. Words like Sickler does not define who you are... Demand that they change the language and allow you, your dignity... For in spite of your pain you are a human being worthy of esteem and respect due to any other. My body is not free of these chains and cycles of Pain but I can fight to free my mind.

Nazaire's favorite links:

September is National Sickle Cell Awareness Month
Support your local SCDAA member organization
Sickle Cell Disease Association of America, Inc.
http://www.sicklecelldisease.org/

Global Sickle Cell Forum
http://www.sicklecellforum.org/

The Sickle Cell Information Center
http://www.scinfo.org/

Sickle Cell Disease Association of America,
Southern Connecticut, Inc.
http://www.scdaaofsouthernct.org/

This is a Global Issue so please search for info in your part of the world.

Please Share this Silent Video
Thank You

Hello to my online friends in Haiti Brazil Ghana Japan Nigeria Australia South Africa Canada Puerto Rico India China Mexico Spain France Italy United Kingdom Jamaica and many many other places that have helped me share this Silent Video with out global community.

Thank You

  • likes, 6 dislikes

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Uploader Comments (nazaire73)

  • wth ?? my friend is white he has the trait.

  • yes I have white friends who have the disease not just trait so its not impossible Sickle Cell is not a black only disease as people think... many people of all races suffer this pain

  • keep it up - this is some fine work

  • still waiting for that movie

Top Comments

  • sickle cell isnt fun too have i wish i never had it it ruins my life

  • You are one talented Brother! May God continue to Bless you and your Family.

    Much Love

see all

All Comments (46)

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  • Today, I listened to your story at the Fourth annual Roland B. Scott Memorial Symposium. Your story about living with sickle cell disease and your life experiences touched me. I am a parent of a child with SCD and I now realize how important it is for me to advocate for children with this disease. God has given you a wonderful talent. I am blessed by your artwork. Thank you!

  • Sickle Cell is only common in blacks in the U.S. but it's actually a mediterranean disease. Get educated People

  • @lady80sbaby for years I would just delete the racist post but now I just leave them as part of the awareness of what some of us with SCD face.

    I just don't try to come here too often to read them

  • and I'm not attacking the uploader I'm talking to the people making racist remarks!  thanks for showing us just how ignorant you are!

  • hey idiots....sickle cell isn't just a black disease. please educate yourselves before you post something! thanks!

  • STOP SHOWING ME THIS T_T

  • Lo0l0ol0ol0ol0ol0ol0l0ol0o Nigger Cell Anemia. Fuck niggers.

  • Damn.. I feel his pain . i was born with the same thing .. (im not lying like some of you..)

    And the doctors and nures dont make it any better, all they do is drug me up with morphine and other narcodics until im to sleepy and drowzy to think about how much pain im going through..they do that every 3 or 4 hours around the clock ... SOME PEOPLE DON'T UNDERSTAND HOW BAD THIS CRAP HURTS!!!!!!

  • my bf have the disease ,i almost lost him twice,

    great job...keep the Awareness going...

    ☮♥ ♪ & ART!

    CandiSweetART10

  • at-least i do not have sickle cell anemia...

    i do not want to have pain :l

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