For our precious Veeti (our little INCL warrior)

Veeti is son of my cousin. He's very important to our family. We love him so much no matter what he have to go thru! Veeti's now 3 years old, but he's not like others in that age.. He will never be.

ABOUT INCL:

INCL is also known as Infantile Neuronal Ceroid Lipofuscinoses or Santavuori Disease is a form of NCL and inherited as a recessive autosomal genetic trait. The disorder is progressive, degenerative and fatal, extremely rare worldwide with approximately 60 official cases reported by 1982, perhaps 100 sufferers in total today but relatively common in Finland due to the local founder effect.

The development of children born with INCL is normal for the first 8-18 months, but will then flounder and start to regress both physically and mentally. Motor skills and speech are lost, and optic athropy causes blindness. A variety of neurological symptoms, such as epilepsy and myoclonic seizures, appear. The senses of hearing and touch remain unaffected, and sufferers have been known to enjoy music. The average lifespan of an INCL child is 5-10 years.

Treatment is limited. Drugs can alleviate the symptoms, such as sleep difficulties and epilepsy. Physiotherapy helps affected children retain the ability to remain upright for as long as possible, and prevents some of the pain.

Recent attempts to treat INCL with Cystagon have been unsuccessful.

|| Dont take these photos for any purpose! All copyright belongs to my family! ||

Category:

Nonprofits & Activism

Tags:

• Veeti
• precious
• INCL
• warrior
• deathly
• ill
• baby
• little
• boy
• Infantile
• Neuronal
• Ceroid
• Lipofuscinoses
• Santavuori
• Disease
• love
• Here
• Comes
• The
• Sun

[hylah16]

Sending healing his way!!!

[TerachiShinya]

@hylah16 Sadly there is nothing that can heal this.. :(( We are going thru long goodbyes.

[Count556]

He's such a beautiful little boy. Breaks my heart to know he's got such a terrible disease. If only all children were free of diseases and sufferings...

[ChangingPlanet1]

he sure is a ball of sun!

[HealthRanger7]

Beautiful video!

Get well soon!

[beecoz3001]

I really cant stop crying, i know itsno help but its B!COZ i just wanna help so much, i wish i could pick his little body up and everything would be just fine! Im just so upset coz ive been blessed witha curse of knowing whats going on out there n knowing that them,,, i dont wanna swear but the government who spend billions on war over lies, the poisons they poison us with the vaccines that causes similar things n worse ect ect, when a tiny beautiful Veeti nobody can help medically! LUV U ALLxXx

[TheDimensionalwalker]

I will send all the energy I can to Veeti. I dont know how effective it will be, but I will do my best. Anyone else that is a Reiki practitioner, or any kind of energy healing, I call for your aid in this! The more people working on this, sending loving energy to this poor child, the greater his chances of healing! Let us do all that we can do

[TheDimensionalwalker]

Wow! This child is adorable. i see what you mean, he isnt like others his age! I can sense the weight of destiny strongly on this boy. He will do great things on the earth, I can just sense it! Namaste little Veeti, may your light shine upon us all

[ADDAWOW]

sulonen poika=)

[kattengosta]

beautiful!!