A Botox (Botulinum Toxin) Injection for Dystonia

I get injected with a poison on a Quarterly basis at the National Hospital for Neurology and Neurosurgery. Botulinum Toxin is derived from the Botulism virus and is most commonly known as Botox. Sadly, my neck does not look any younger (only joking, I'm not vain, really!). It gets injected into four neck muscles to help control the symptoms of Cervical (neck) Dystonia, also known as Spasmodic Torticollis. Whilst it doesn't work for everyone, it has worked wonders for me because back in 2008 my head was locked into a painful, twisted posture that had left me virtually bed-ridden due to the intense pain.

Category:

People & Blogs

Tags:

• Botox
• Dysport
• Botulinum Toxin injection
• Cervical Dystonia
• Spasmodic Torticollis
• Dystonia
• Vicar
• Hospital
• Warner Pidgeon
• Dystonia research
• Dystonia treatment
• Dystonia Society

[nonsulen]

There is hope, I recovered, there is a way and you can do it. You can get better naturally. I was lucky I found out what to do before it got out of control. I am not sure if what I did will help you recover 100% but you should try. I recovered in under one year. My neck was out of control, my left foot was clubbing, I could not sit, lay or stand, I trembled, I lost my balance, I clinched my jaw till my teeth came loos. I researched I found, it worked. No more botox, no wires in my head

[TheRevwmp]

@nonsulen That's great to hear. I believe about 5% of dystonia sufferers go into permanent remission, so I hope and pray you will remain pain free.

[MUNYZAKRIA]

how/ who does your injections? I've been there several times & it never really helped! I am desperatekly in pain as my symptoms have flared up again? please can you advise? many thanks

[TheRevwmp]

@MUNYZAKRIA I go to see a Neurologist at the National Hospital for Neurologu and Neurosurgery, Queen's Square, London. I sometimes see the consultant, other times I see one of his assistant Doctors, or occasionally a Specialist Nurse who specialises in Botox injections for Dystonia.

Have you asked to see a neurologist to ask if there are any other options for you? Some people with very bad dystonia have an operation called Deep Brain Stimulation.

[castingtherunes]

My girlfriend has torticollis and she is very apprehensive about the Botox injections. Side effects include difficulty swallowing and breathing. Aren't there better alternatives?

[TheRevwmp]

@castingtherunes Hi there, my swallowing difficulty is only very minor, and only temporary too. I struggle swallowing bread, strangely. Apart from that I'm fine! I've never had breathing difficulties after having Botox injections. Personally, this has been by fat the best treatment. It works for many people - although not everyone. I definitely think it is worth trying Botox, so long as a good Neurologist is recommending them of course.

Kind regards, Warner.

[nonsulen]

@NCN1970 email me again in a few days. i will put together a list for you to follow. do you have any health problems?

[NCN1970]

@nonsulen what did you do ?

[nonsulen]

@TheRevwmp there are a lot of factors that caused & is causing you dystonia. no I am not part of the 5% or if I am maybe they should look at the 5% again. I never stopped my remedies, I still take them everyday. I had a relapse I had given up but I looking healthier so I continued my remedies & 4-6mth later it was gone again. flush ur system out MilkOM & lot of water 3x week. eat a lot of good fats, pro & fresh veg. sugar dairy fast food= no CONCENTRATE. I will post a video soon

[nonsulen]

@MUNYZAKRIA What do you do for a living? I may be able to help.

[nonsulen]

@TheRevwmp Thank you. It is not hard to put my method into practice only dedication. If you want to try it let me know.

[nonsulen]

@TheRevwmp It was sudden remission, it practically stopped within a few months. I don't believe it was remission, I believe it was what I did that reversed the condition. The brain can recover, it can rewire to find new paths to restore the motor skills. I also believe it is not all a brain issue, as I discovered during my recovery . Some people may not be able to recover 100% because of how far advanced the disorder is but they can make their life better without $botox$ or brain $implants$.