on her breathing treatments

Tori doing her nighttime breathing treatments. She takes an albuterol inhaler, pulmozyme, hypertonic saline, and her vest with Tobi.

Category:

Education

Tags:

• cf
• cystic
• fibrosis
• tori
• and
• winter
• the
• vest
• cpt
• breathing
• treatments

[luvlissy]

Try te hypersonic ask her drs abt it it makes my lungs alot more clearer

[krystalmike1999]

@luvlissy She is on that now. I believe we started that about a year after this video was made. Also we were able to stop Tobi because she is no longer growing out pseudomonis(sp?)

[TheFlowerpower96]

I have Cystic Fibrosis as well and I am 14 years old and i have not been in the Hospital for IV Fluids once in my life, and I am truly lucky to not have gone into the hospital! I homeschool too. I think all kids with CF should homeschool... cause they would have a better chance at not getting sick. : ) But of course i am going to go to College. yeah.. : )

[krystalmike1999]

@TheFlowerpower96 We have gone back and forth on homeschooling. I understand your point of view. For Tori it hasn't mattered if she was ion school or not when she has gotten sick. By the time she is in middle school we will probably start homeschooling her again.

[krystalmike1999]

Thank you Peter for putting her on your prayer list. That is much appreciated. I will tell her when she gets home from school.

[Momoftwinsplus1]

What a brave girl you have. My mom uses the vest too and we always laugh when she talks with it on.

I really hope one day they can find awesome treatments or a cure for CF. I think a lot of people don't realize how it basically rules your life sometimes, like if you are sick and miss school or spending hours doing meds trying to breathing every day. This video is a great way of showing that. Thank you for posting her and sharing your beautiful little girl with us.

[krystalmike1999]

It is truly funny when she tries to sing... Tori has come along way to actually enjoying her vest. She used to cry so hard when she took it.

[Budmetro]

Very cute and admirable. I hope things are going well. Good luck and God bless!

[Chi2009Chi]

Oh, bless her lol what happens when she is sick and misses school? missed it..theres one at the hospital?

[QuickAtTheKeys]

may the Lord be with your family and daughter always, best wishes and good luck

[mleex3syou]

your daughter is nothing but in my prayers. i am so sorry.. i'll also put her in the prayer book at church :) i hope all goes well with the future. god bless.

[KellyL2121]

This girl doesn't have athsma.

She has a disease called Cystic Fibrosis. I suggest you look it up online. Then you'll understand why her mother doesn't exactly have options like "alternative natural treatments" to help improve her daughter's condition. Please look up the disease- you'll have a much better understanding if you do. Don't worry- it isn't just you that has no idea that diseases as terrible as CF exist... its fairly common for people not to know about this terrible disease.

[Sandyrhh]

I just finished watching Tori and her treatment with you talking with her and of coaurse me crying. Collin is like that. He wont talk about CF. He loves school and everything about life. He is so happy and possitive. I see that is Tori also. I wonder if all CF kids is lik ours. Collin said Sat hewanted to be likeCassi and not have to take meds for food. She said collin God made you like that for a reason. :o)