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Uploaded by on Jun 20, 2008

My Tribute to my little brother Lukas John Schweers whose innocent life was taken from his sweet body on the 19th of October in 1995. This life yet so innocent, was taken by his fatal enemy, Diamond Blackfan Anemia. A very rare, yet fatal, opposite to Lukemia.
Thank you soooo much for watching...

Diamond Blackfan Anaemia (DBA) is a blood condition caused by a failure within the bone marrow. It is characterized by an inability to produce red blood cells (necessary to transport oxygen around the body). It is typically diagnosed before the patients 2nd birthday with the majority of cases found before 4 months old. The condition is extremely rare, affecting approximately 125 people in the UK and only 600-700 world-wide.

The exact cause is not clear, but the problem seems to be a fault in one of the early steps of red blood cell production. In up to 25 per cent of affected children there is a fault within a gene called RPS19 (short for 'small ribosomal protein 19'). Research is taking place to try to identify the genes that are damaged in the other 75 per cent, with some promising leads, but no definite answers as yet.

The condition is named after the 2 doctors who first documented cases in the 1930's. Dr. Louis Diamond (the founder of the Haematology/Oncology branch at Children's Hospital in Boston, USA) and Dr. Kenneth D. Blackfan (the Chief of the Pediatric Department).

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Uploader Comments (schweermo)

  • baby im so sorry.

  • thanks, angel.

    I love you.

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  • im so sorry. my son suffered from dba before undergoing a bone marrow transplant; although i can feel your terrible pain that doesnt go away. i lost aidens twin brother afterwards who was not sick in anyway. these pictures of your son look just like my son. literaly i thought it was him. if you would like to talk you can find me on facebook. my name is cami shuman.

    i am so sorry for your loss.

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