Preeclampsia journey....our 1lb 4oz 29wk severe IUGR preemie

Our son Tristan's detailed journey through NICU suffering from severe Intrauterine Growth Retardation (IUGR) due to very early undiagnosed Preeclampsia.... our journey 16 months on

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People & Blogs

Tags:

• Preeclampsia
• preemie
• baby
• NICU
• premature
• prematurity
• intrauterine
• severe
• IUGR
• pregnancy
• birth
• c-section
• miracle

[zombogurt]

Every time I watch your video I can't help but cry...with emotion. My daugther was born 32w with severe IUGR and SGa 860gr and I sooo understand all your comments and I can see her, me and her father in so many of your pics. She will be soon 12 months and is still so tiny but we are extremely proud of her. I wish you all the best from the bottom of my heart! :)

[ourmiracle]

@zombogurt It breaks my heart every time I hear of another family having to go through the highs and lows of NICU and beyond, I'm so sorry you and your family had to take that journey but glad to hear your she made it through. Sincerely hope she is doing well, all the best for you all too

[tekubus]

That is SO sweet... At first I was thinking why dont they just kill it and try again for a healthy one, but the little bugger grew on me, or maybe it was Enrique...I dunno, God bless.

[ourmiracle]

I did think in his first weeks that if the powers of be were going to take him to DO IT NOW before we get more attached but we have lost 2 babies to a recently diagnosed rare condition and may never have the chance to be parents again let alone to a healthy one. Despite the rollercoaster journey and challenges we face we feel lucky to have him. I have been told that I should be grateful for him....I think everyone with healthy kids should be the grateful ones.

Thankyou for watching!

[viklondon]

Hey guys, I saw on the other comments he's gonna be 4 soon... why not put up another video of him now.. how's he getting on

[ourmiracle]

Thankyou for watching! Yes there is another video in progress, it will be a while away but I hope everyone will agree that it will be worth the wait!!!

[ourmiracle]

yes, he's ok......he turns 4 soon!! :)

[stopbeingnasty]

the "is that you Mr giraffe" bit got me all teary!!! Of all parts!

[lennceberus]

@ourmiracle Oh my goodness his just so precious and such a little fighter!

[1979amw]

he is a beautiful baby boy God Bless Him and Your family for staying strong

[LiesieK]

I gave birth 4 months ago to our little boy who was born at 29 weeks and weighed 970 grams. Your video brought back so many memories and i cried my eyes out. He is doing well and even though he is very small for 4 months (3.8kg) he is doing great and they truly are our little fighters.

[coolnight122]

grew up wasnt he like 16 pounds at the age of one

[ashleighsimon]

I'm very glad I came across your video. My husband and I have just been told our baby has sever IUGR at only 23 weeks pregnant. It is going to be a rough road but your video is giving me hope when there is not much to hold on to!

[CUSTOMLIFR]

Awesome!

[BayouChick31]

Your son's story echoes mine in so many ways! My daughter was born at 28 weeks, weighing 1 pound, 13 ounces due to severe preeclampsia. She was in neonatal ICU for 3 months. She had many tummy issues, kept on getting distended and they had to stop the milk feedings and stick with IV nutrition, but as soon as she got over it we got another bomb dropped on us - retinopathy, but went home when that was corrected!We preemie parents are in a class all our own. So glad your little one is thriving!