My Fibrous Dysplasia Testimony

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Uploaded by on Nov 5, 2011

Me talking about my experiences with having Fibrous Dysplasia.
The link to my surgery video, pictures, and 3D Models of my skull can be found here:
http://www.waent.org/archives/2009/vol2-2/fibrous-dysplasia/fibrous-dysplasia...

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Uploader Comments (tomslagle93)

  • Thank you for posting this. My son is 10 and was diagnosed 5 years ago with FD in his left maxilla. The hardest part for me has been not knowing what to expect. I assume his will progress much like yours has, and it's great to see that when he reaches adulthood, his FD will be undetectable to most people (as yours is). You've made this mom feel better :)

  • @manemama No problem! Yeah, it was a lot worse when I was younger, but after one surgery, a lot was corrected. It wasn't really much of anything for me to worry about. The only worries that the doctors had was it affecting my sight, but i see just fine!

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  • WOW you sound just like me BTW, mine is in my cheek as well!!!

  • You should check out my FD videos! Thank you for posting your's. We need more FD patients to come out and talk about this.

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