Mikeys Chiari Journey

Mikey has chiari malformation and has had 7 surgerys in less than a year. He had a stroke during his last surgery. He also has two shunts. He is 4 and a half he had his first surgery when he was 3 and a half

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[sapphirequartet1]

How is he doing now? Cute little thing. And such brave strong parents.

[hollimagolli123]

@sapphirequartet1 mikey has had 12 surgerys and may have eye surgery due to problems during his 11th surgery. they paralized the left side of his face.and caused him to see double

[URCNFUN]

what a strong little boy! I'm in tears watching this. I have chiari malformation and a lesion on my brain stem that the drs thinnk's cancer. Gonna have my first surgery in less than 2 week and on from there with this brain stem thing.

[hollimagolli123]

@URCNFUN how are u since your surgery

[eabnjb1522]

my son is almost 5 and has chiari he has 4 surgeries thank you posting this video watching makes me feel that we are not the only ones out there going through this terrible battle....my prayers are with you and your family

[hollimagolli123]

@eabnjb1522 thankyou

[mkjs88]

What an amazing child! My daughter just had her decompression March 14th 2011. She is 8 yrs old. She also has Syringomyelia, a very large syrinx in her spine caused from the Chiari It is located from C-3 to T-10 in her spine. She will have her MRI in Sept. to find out if the surgery was a success. Are you on FB? there is a support group called Our kids with Chiari... It has been helpful to me being a mom of child with this disease. My prayers are with you all! God Bless!

[mkjs88]

What an amazing child! My daughter just had her decompression. She is 8 yrs old. She also has Syringomyelia, a very large syrinx in her spine caused from the Chiari. She will have her MRI in Sept. to find out if the surgery was a success. Are you on FB? there is a support group called Our kids with Chiari... It has been helpful to me being a mom of child with this disease. My prayers are with you all! God Bless!

[mfreeny222]

My 14 year daughter is suffering with Chiari Malformation also...SHe had her first decompression surgery 11-07-2004 and she had to do occupatonal therapy to regain use of her fine motor skill properly. Her headaches improved, but they never went away and she ended up developing seizures. With medication her seizures are controlled, but her headaches keep her in the hospital all the time. Tomorrow she will have her second surgery...(12-15-2010) fighting for a cure for Chiari Malformation!!!

[hollimagolli123]

@xoDevyn73 he will be ok just believe and pray

[nthread]

THis is so sad, this boy has been through the wringer! What a champ. I am wondering how the parents know there is something wrong to begin with, if the child is so young, they can not talk, how can you know? Thanks...best wishes.

[FlyinHyy]

@hollimagolli123 oh my. so glad he has such an amazing attitude. how did neurologist appt go?

[hollimagolli123]

@FlyinHyy hey He is ok for now he sees double out of his eyes because they hit his brainstem during his last surgery. so he may have to have eye surgery in 6 months. the left side of his face is also parailyzed. he has a pocket of fluid built up on his neck he seese his neroligest tomorrow. he goes to therapy twice a week. he is very happy. he has had a total of 12 surgerys