Twenty Two - A Song About Ulcerative Colitis - Jordan Sweeney

I think the lyrics explain exactly what I was feeling at this time. I just turned twenty two in September 2007 and i was writing a lot of songs. I was researching a lot of things about UC on the internet. I found this procedure called the "J-Pouch surgery." Everyone who has had it was saying that it's awesome, and they feel normal again. And I was like, "What am I waiting for?" I know that that is the only Cure, but my body just isn't ready for it yet. Since I was diagnosed with my UC, I have felt more mature and my song writing had woken up, and that's what this song is about."

LYRICS:

Twenty Two
I've been known for twenty two years.
I have learned to write.
And I've been writing songs for the last twenty two years blind,
because there's something lurking deep inside.
There's something I don't get.
I've been asleep twenty two years now my eyes are wide.
Yet there's still something that I can't throw my wings on to.
My eyes are dry.
Oh I won't cut my guts out, first I'll sit and write.

What am I waiting for?

I've been holding on for twenty two years.
Now I'm not, because I understand my cure is poison that my body won't drink.
And I've died before, but now I'm stuck deciding my own fate.

What am I waiting for?

music and lyrics by jordan sweeney

Category:

Music

Tags:

• jordan
• sweeney
• twenty
• two
• better
• quality
• ulcerative
• colitis
• crohns
• crohn's
• disease
• 22
• jpouch
• surgery
• remicade
• asacol
• imuran

[bluskittlekilla]

>< Im so sorry.. I have UC too.. I got diagnosed when I was 17,, and I was pretty bad and my pediatrician had to beg my GI doctors at the hospital to use Remicad because it was an experimental drug the doctors pretty much were getting on surgery to remove my entire colon.. Im 23 now and it is very much a miracle chemical for my body have yet to have a flare up in 3 years.. I hope you all get well you are all in my hearts <3.

[ILikeOWLS]

@bluskittlekilla thanks!

[pekitivey]

Fantastic video, i understand you completely.

your an inspiration

[ILikeOWLS]

@pekitivey awww, thanks so much!

[veraoptics]

I am with you on this somewhat crappy journey.

[ILikeOWLS]

@veraoptics ahh thanks... follow me on twitter and we can chat! @jordansweeney22

[jmsdvs]

So I have UC as well or at least I did until I had my appendix removed. Ever since then I haven't had any problems for about 3 months straight. I'm still getting used to leaving the house without using the bathroom. Message me if you want to hear more or whatev.

[ILikeOWLS]

@jmsdvs thanks for the heads up

[ILikeOWLS]

@IBDUwebsite cool stuff, thanks for sharing

[pekitivey]

@ILikeOWLS very true im also on imuran, and the big thing is to keep the stress levels down :D

[pekitivey]

@A12345GUESS  what medicine is dat? the steroids?