Niemann-Pick Disease, What is It? Why is it a Child Killer?

i spent a few years not knowing what is wrong with my daughter finally we have the diagnoze its just to difucult that we cant help her to get better its horable ill pray for my child and for all child in this worldwith similar disease god help us

I will keep you and your daughter in my prayers. No one should have to suffer this kind of pain, regardless of what the name of the disease is. Be strong and cherish each and every day with your daughter. Feel free to write me any time.

I was doing research on my daughters autism when I found this video. Thank you so much for informing me of this. I think a friend of mines little son may have died of this. The doctors couldn't find out what was wrong with him. He showed all the symptoms that you gave in this video. I hope that more people especially doctors become informed of this so parent don't have to go through the not knowing stage. If you know what something is I believe that that you can at least try to fight it.

Exactly!  One of our goals is to bring this disease out of the darkness! Doctors must become aware of it so another family does lose years trying to figure out what they're fighting! Thank you for taking the time to post. All our best to you and your daughter!

one of my dearest friends, lost her daughter many, many years ago, and today, because of my videos, she wonders if her daughter, Rhonda died for NPC. I'm sorry for your friend, but this continues... too many parents don't know where to turn, and how to find a diagnosis. The beauty of GabrilleLaverde(dot)com is that awareness is paramount. Everything we do is based on increasing awareness. Thanks for your comment.

I will assist in fighting this disorder. Because I hate to see children die. God Bless u all.

Thank you. You have helped us fight just by taking the time to become aware of this condition. I hope no one you know will ever have to face this, but if they do, you will be able to help them get their diagnosis much faster. Thank you for caring.

That's really heartbreaking, it's very difficult to fight back the tears watching this. It's bad enough having your parents suffering from alzheimers but to see your children suffering from a similar condition is just terrible, my thoughts are with you. I just watched a related video on Yahoo/ABC News about two twins diagnosed with it. You should check it out.

Thank you for watching. It's true - - watching your child suffer is horrific. We know the Hempels and have been in close contact with them over the past several months. Thank you for becoming aware of this condition.

Adi and Cassi, yes, we watched it the morning it aired. Their parents are working very hard, and they are wonderful wonderful people. Thanks for your comment!