Ankylosing Spondylitis - Personal Opinion on Coping

Personal opinion of dealing with it, and ideas on coping.

Category:

People & Blogs

Tags:

• Ankylosing
• Spondylitis
• AS

[stetelle]

I have this shit and everyday I wanna kill myself. Lost friends, life, gf, university, everything.

I'm 20 and I'm feel with 100. Maybe is better die.

[elcarim77]

Excellent video on AS..Well done.. You find the words I fail to find when trying to explain this condition and the affects it has on me /us spondy types.. You should get on twitter along with us other spondy's as your videos are a great help and for that I thank you!!

[daybates]

You say you are not sure about the starch , Have you tried not eating starch ?

Do it now , You say your neck and back are fusing these are irreversible so just give it a go and you will be amazed by a book by carrol Sinclair google it Or you could borrow mine :-)

[naturalsystah]

@astrid21zna9 Haveyou heard of the NASS? They have support groups, hopefully there's one in your area...

[uwdcry2]

Thank you for sharing! You are funny. Dx this year with AS. My first pain was when I was 12. At that time I was told I had Scoliosis. I wore a back brace for a few years and just dealt with the pain. My Iritis started at 29 but was only tested for RA which was neg. My "focus" was always on the back. Had surgery at 43 to correct some of the curves. No connection to the back and eyes until this year!! Now 53 yrs old. New hand pain got me to the right doctor. No help so far... just glad for Diag!

[sunderlandoful]

Do you feel angry towards your GP? I had the same problem at 16 and kept getting told "your just young. Its back pain." until after 15 visits and 4 misdiagnosises he sends me to a rheumatologist (by accident i might add). Everytime I see him now I feel hatred. Im a 28 year old guy who used toplay rugby 5 days a week and now every day is a battle even though Im on anti-tnf. I agree with the standing tall thing. I go to the gym 3 times a week. Keep fighting to stand tall mate.

[wilko2603]

totally agree with the exercise i have been doing stretches, swimming (only when it let up a bit) and i have been walking without my stick for the first time in ages. It does still hurt like a bitch but it is so much more manageable.

[dewey695]

Good advice on AS. Exercise is vital for managing AS, particularly breathing.. The trouble is, it can be hard to motivate yourself to do it. Best to do something you enjoy, for example walking, swimming etc.Also useful to lie face down for some time during the day. This helps with posture.

[soulduck33]

Great video. You have a good positive outlook on life, keep that . Your road will be a tough one but, one day you will be an inspiration to some one such as my friend with A.S. was to me.

[totaledcarfixer]

I would luv to chat with you !! i also have A S .