Fibro hell Michelle, TRYING to help Families Understand FM/CFS

Backing up A Fibro Warrior! We live with pain that is difficult to understand
AND The worst thing is when someone tells you--YOU LOOK GOOD, You can't be sick. Dr's have NO Consensus BUT FIBRO WARRIORS All agree!
Families WE ARE NOT ASKING FOR PITY--Just Understanding! GO Carla

Category:

People & Blogs

Tags:

• fibromyalgia
• Families judge us
• chronic fatigue
• pain
• XMRV
• nevada

[dawnten]

Thank You Michelle. You say things that I cannot. My bloodcells are also screwed up and they want me to take chemo....NOT....now my bladder and kidneys are failing so they think it might be MS>>>>shit they don't know what to do or say to us. I pray everyday for God to take me. My family are evil people and I am going to post this on my facebook. Doubtful they will listen, but still.....love you xo

[mcertonio]

@dawnten PLEASE READ my BLOG or see DR Nancy Klimas--ALL NEW RESEARCH!

logicdropout@blogspot.com

[StarryEyes998]

I hate when my family tries to tell me I look good! Half my hair has fallen out, I'm paler than paper, and my eyes are purple and swollen. It hurts that they have to lie to me. I just want to be a normal teenage girl and go out with friends and be confident. I feel like no matter how hard I try I can't have that.

[bigmodey1]

i so tired i just feel like giving up .my husband no longer sleeps in the same room i fight with sweating so one min im hot the next cold i battle the air cond along with i am constantly moving due to pain. i have bladder issues which cause me to get up &down alot im treated for restless legs,migranes /tension headaches high bp, diabetes, muscle spasms, sleep prob, i have lumps which they call fatty tumorswell there spreading,ibs,my gyn says i need phys therpy for tension cause it hurts :(

[bigmodey1]

I have 4 kids and have been married 20 years . i was diagnosed about 2yrs ago i was 37 im almost 40 next month - i think i have had it since i had valley fever when i was 5 yrs old almost died from that &have always been ill but after my 3rd child &a failed spinal for csection with complications i started down hill&my husband SAYS its Fat&lazy, just dont understand. i am sick and in pain and the last thing i need is them on me all the time . my mom has ms so she is all i have as for support :(

[ravenmom5]

I know all too well about no one understanding, I was married, he thought I was faking, mocked me and then beat me. Thank you so much for these videos.

[heyjude0821]

I have written to you before Michelle and I listen to and everything you talk about and I wish that we can make THEM Understand because we feel so alone in this illness, When we could just make them understand that fire burn threw our veins n a daily basis and the pain in every joint but really it is everywhere.... I wane to scream to make people realize this illness is almost as bad as cancer but we need to stand together and make THEM understand!!!!!

Judy with a mission.....

[rayaalove]

everything you say i know i have i hurt inside and out. thank you so very much you are someone i that makes me feel comfort. everyone thinks i need attention im fake. even doctors. i know im in bed everyday. when i tell the doctors they say i just want pills! no i dont want pain!

[Megpieballew]

Im crying right now... Ive been suffering for the last 5 years and finally was diagnosed with Fibro on Halloween.. Trying to explain to my family why icant go hiking with them or fishing , eventhough I really want to, is devastating..On my good days i try to catch up everything and do everything with everyone and then i pay for it for days,,, Its very frustrating and i get angry alot.. And you feel so alone at times, ive been going thru a deep depression here lately. You videos help me.

[chesmoja]

haha, you made me laugh with that vitamin crack!! as we wouldn't have tried everything after 20 years.. 20 years for me too...hugs to you.

[life10124]

All of us who have M.E we should all blow our fucking brains out, that will fix the fucking problem!