Dystonia effects

This is what I deal with on a daily basis. It's not pleasant, and it took a lot of guts for me to record myself, since it's pretty embarrassing for me personally. I suck it up every day and hopefully I can get some form of helpful treatment for this soon. I have good doctors, so that's a huge plus. Uploaded this for family members and some of my subscribers who have asked. Please no pity, I manage much better than others with this condition because I have a VERY high pain tolerance. Any questions, feel free to ask. And yes, I will deffinately still be making gaming videos!!!!! Nothing could stop me from bein a geek!!

Category:

People & Blogs

Tags:

• Dystonia
• spasm
• tremors
• ticks
• shakes

[abc123schnappi]

My mam has dystonia in her neck so it shakes back and forth and we know how hard it is to go through it daily, sometimes she has really bad episodes and she has to have botox in her neck because it gets so bad so, i understand

[jstark069]

@abc123schnappi Thanks... I'm actually lined up to receive Botox injections. Only problem is that they are super expensive here. As soon as I get them, it should take some of the edge off so I can get back to painting. Which is what I love to do.....

[Jules1999]

I wonder if Medical Marijuana would help .. I know it relaxes the body and helps with pain.

[jstark069]

@Jules1999 The meds they have me take now have helped a lot. I'm not against Marijuana. I'd rather have that legal over alcohol any day. I just couldn't go that route because of my 3 lil girls, and my 4 year old has real bad asthma and other breathing problems. So, even if it would help me, I would never risk anything with my kids health.

[chrisfur2]

so is this like the opposite of what michael j fox has? ima try to look up dystonia, ive never heard of it until i saw this. and i saw this cuz i saw your pc vids.

[jstark069]

@chrisfur2 Just wanted to let you know that that cheerleader ended up being a huge faker for publicity, and is actually getting charges pressed on her. It's kind of like what Michael J. Fox has. It's a neurological issue mainly causing spasms and uncontrolable shaking.

[jillybean180]

You're awesome, keep trooping, man, I can't imagine any girl who'd give you up :)

[PS3andPCgamereviews]

wow, i'll be praying for you.

[ioldanach7]

I was just watchin and I am going to be making some more vids and yes it takes a lot of courage to do this...I have been suffering from Segmental Dystonia since I was 19 and am now 37...it takes a toll, and the meds...and well for the longest they did not know what was wrong but now that they have it pegged hopefully one of my treatments will work, if your help let me know. Bright Blessings.

[revup2]

Hi All STs. I have been suffering from ST since 1996. I had it when I was studying in Melbourne Australia back then. I had to postpone one semester of my study and return back to Malaysia to recuperate before returning back to complete my study. The onset of my illness was felt on the coldest winter in Melbourne. Being Asian, the winter was then something that my body had to get used to. My specialist was Dr Robert Hjorth (Melbourne) and Dr Haniffah (Penang Malaysia). I realized that by staying

[amandarcurd]

I have this too. I hate the numbness. When ever it gets really bad It feels like my veins are exploding. And the pain sucks....

[margarethaverbraeken]

its take me 3 years to be brave enough to show me in a haveley seizure. so you find me also one tape in a bad day. but also the effect whenn i go in transmissionmedtitation. the only moments i sit still. i even can lot lay down. in meditation a move for almost 2 hours not. keep yourself strenght. the bads moments wass whenn the secons specialist say i can nothing do for you.

[rampage12377]

Honestly I kinda wanna cry cause this happen to good people

[neurodoc170]

Hey there, the name is Dave and I'm a nneurology resident with the University of Toronto doing a study on dystonia and adaptation. If you're interested I was wondering if I could pick you're brain? Drop me a line. Dave

[MsKat65]

Hi there

As many who have written to you. I have this also. When it starts if I get my meds on board right away and take it easy i usually do ok. But if I do not it gets out of control. You are the first person who I have seen that has very similar leg symptoms where it spasms and shakes or tremors really bad like mine. Good luck. Would love to chat sometime .