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Fallyn's Story - Living with and overcoming RDEB

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Uploaded by on Jan 7, 2010

Fallyn is a "butterfly child" - her skin is so fragile, it can blister and break at the slightest touch. She has what is known as RDEB - a genetic disorder that was previously incurable... but now there is hope. Check out her story here & for more information, visit us at www.helpfallyn.org.

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  • Hi Fallyn, im Meghan from Michigan. I hope you get better, you have a great spirit and your the toughest person i have ever seen. i wish you my prayers and wishes. Keep fighting "butterfly child' be gone and be brought a new 6 year old girl;) get better!

  • You are such a sweety! All the best from me. Ana, Belgrade.

  • Hi Fallyn! Steven from San Diego here. I hope your transplant goes great. You are loved and admired by thousands of us. God Bless You.

  • one of the strongest and bravest girls i've seen.....Fallyn get well soon sweetie and yur a fighter!!!

    

  • Alesandro, Fallyn wears slippers because 'regular' shoes caused injury & pain. Post transplant, she has been wearing crocks without too much problem.

  • hi fallyn, i just came across this video and i hope you're getting better!!!

    i'm alessandro from venice, italy.

  • fallyn you are so beautiful nd i hope that u live a wonderful life

  • She is so strong and beautiful. I hope the  transplant procedure goes well and even much better than expected, and she gets better and has a normal life.

    God bless you all, such a wonderful family :)

  • Fallyn is such a courageous girl!! We look forward to hearing about all of the wonderful and amazing things she will do in the future. Good luck!

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