I keep wondering how much function I have permanently lost because of physician ignorance?? EBV in 1981, chronic neck/back pain soon after. I have had very brisk reflexes, can't walk heal to toe for at least last 15-20 years. Pain, headaches, stiffness, pain, muscle wasting, pain, numbness, can't lift my arms, pain.... Now, for the past 6 years, I am in bed 24/7. The internet is my only lifeline. I keep reading about the bad effects of MS drugs, and I think it scares me more than the MS!!
I am 99% sure I have MS, and have had it for at least 30 yrs. And I'm STILL waiting for a diagnoses!!! But I FINALLY got a doctor to order a MRI of my brain in Dec. 2011,which shows lesions in the pons. I am leaving for a 15 hour drive to Cleveland Clinic in just a few hours from now.
I have been ignored, referred to psychiatrists, psychologists, pain management for meditation and biofeedback, accused of drug seeking. Literally THROWN OUT of several hospital emergency rooms while crying..
I've got ms im a lady 33 yrs old had it 8 yrs been on avonex7 yrs its making my hair fall out beep takeno time with me I want Ldn @ copanax I pray my girls don't have my genes she's a strong girl. God bless.
Montel I have MS but cant take the Meds because of my Liver and my heart, so I take pain pills and sleep alot, till i have a remittion. I have had migraines since i was 6, I had a problem with my eye and my eye surgeon found my MS.
I Have MS,Thank You Lord for keeping me!Ive had it since 2003&God has been keeping me from giving up&my illness has not worsen I n my life.Thank You Lord:-)
I have RRMS, and I feel hopeful for the first time in years. I created a chat group called M.S. (Millions Strong to raise awareness of CCSVI.). It contains valuable resources to learn about new surgical procedures for people who suffer from M.S. I feel like if I help get the word out these procedures will be recognized, and that people who suffer, like I do, can be helped.
I keep wondering how much function I have permanently lost because of physician ignorance?? EBV in 1981, chronic neck/back pain soon after. I have had very brisk reflexes, can't walk heal to toe for at least last 15-20 years. Pain, headaches, stiffness, pain, muscle wasting, pain, numbness, can't lift my arms, pain.... Now, for the past 6 years, I am in bed 24/7. The internet is my only lifeline. I keep reading about the bad effects of MS drugs, and I think it scares me more than the MS!!
jaxrwld2 1 month ago
and begging for pain relief!!!!!
jaxrwld2 1 month ago
I am 99% sure I have MS, and have had it for at least 30 yrs. And I'm STILL waiting for a diagnoses!!! But I FINALLY got a doctor to order a MRI of my brain in Dec. 2011,which shows lesions in the pons. I am leaving for a 15 hour drive to Cleveland Clinic in just a few hours from now.
I have been ignored, referred to psychiatrists, psychologists, pain management for meditation and biofeedback, accused of drug seeking. Literally THROWN OUT of several hospital emergency rooms while crying..
jaxrwld2 1 month ago
By the way pain pills are awful on your. Liver it ruins it
22bellas 5 months ago
I've got ms im a lady 33 yrs old had it 8 yrs been on avonex7 yrs its making my hair fall out beep takeno time with me I want Ldn @ copanax I pray my girls don't have my genes she's a strong girl. God bless.
22bellas 5 months ago
Montel I have MS but cant take the Meds because of my Liver and my heart, so I take pain pills and sleep alot, till i have a remittion. I have had migraines since i was 6, I had a problem with my eye and my eye surgeon found my MS.
ellaharrismorris 5 months ago
I Have MS,Thank You Lord for keeping me!Ive had it since 2003&God has been keeping me from giving up&my illness has not worsen I n my life.Thank You Lord:-)
2011iam4god 1 year ago
I have RRMS, and I feel hopeful for the first time in years. I created a chat group called M.S. (Millions Strong to raise awareness of CCSVI.). It contains valuable resources to learn about new surgical procedures for people who suffer from M.S. I feel like if I help get the word out these procedures will be recognized, and that people who suffer, like I do, can be helped.
MillionsStrong4MS 2 years ago