The Story of Izabelle Louise Lyndsey Evans

This is a stoy of the beginging of Izabelle's life. she was born jaundice and then at 5 weeks old she was taken to hospital by ambulance as she wasnt breathin right. after a lot of test and a lot of diffrent doctors lookin at her, we finally found out she has a very rare medical condition called septo optic dysplasia she also has diabetes inspidus which is completley diffrent to the normal diabetes as this is all to do with her salt levels, she was also born blind. latley we have found she has very bad reflux and if it cant correct it self she could need an operation by the tim she is 1 year old. as she is still very young the docotors cant tell us how disabled she will be. it could range from just a slow learning to being completey uncapable. her condition means that she was born with out a part of her brain, and so she can not produce any hormones at all, and reallys in mediceins through out the day to keep her alive. when she is 1 she will also need to have an injection for her growth hormone, and as she grows she will need bigger doses of meds and diffrent kinds. the part of her brain that didnt grow is called the pituaty gland, and some children with this conditon just have theres damaged but izabelles is completey missing. with all this, she is still my perfect little girl and is always very happy, and i love her very very much!

Category:

People & Blogs

Tags:

• izabelle
• louise
• lyndsey
• evans
• hollie
• james
• pregnant
• septo
• optic
• dysplasia
• baby
• girl

[5aDie5]

the person under me is so ignorant, well i loved ur video, n my daughter is also blind, she has ooptic atrophy  n i was wondering how did u make ur video????

[holliemchugh]

hi there,

i made it useing windows media player. it was already on mu pc when i got it and think u can also download it free from google or something.

xx

[xxxilsmxxx]

awww... :( this made me cryy :(

[lennic95]

What a cute girl!!

[bradleyclarke]

what a emmotional video but a gorgeous little girl will try to raise as much possible in walk to gunwarf xxxx

[angelkitty02]

Your video touched me..it made me cry! I really hope your daughter is doing well! God bless her!

[leticiaaandrade]

sorry, didn't mean to mark it down, it was a mistake! God bless you both!

[holliemchugh]

lol no worries xxx

[craalm13]

sorry, i didnt mean to post that so many times! It just didnt show the first time so i did it again and again etc!

[craalm13]

wow, sorry! At first it didnt put mi comment up, so i tried and tried again! I didnt mean it to come up 5 times! lolz, soz!

[stukaville]

im glad your daughter makes you so happy, and that shes knows she is loved. I hope that one day, ethical stem cell research will give her something we all take for granted, sight.

[craalm13]

Hey!

I have that too.