Huntington's Disease

A little video that I put together in dedication to my family, my brother eventually got tested and now is positive for HD.

Category:

People & Blogs

Tags:

• Huntingtons
• Disease

[vichumar59]

You are one of the persons who inspirate to doctors like me to study everyday 24/7 in order to find treatment for suffering people.

Science will find the solution ...

[Blackduck46]

Wish i could sing. I had to settle for sad poetry written in my darkest hours. My wife Mary died of Huntingtons 10 years ago. I nursed her at home for the last 9 years of her illness. I knew her father who died of it. We had 4 children together. Three have tested positive. My eldest, now 39, is in the final stages and will be coming home to see out her final year(s) home with me. I have lived through 3 generations of this illness. I am now 63.

There will be no grandchildren to pass it on.

[LeeZenNi]

Good luck to you and your family. I hope someday we will be able to find a cure for this disease.

[TheTROUBLEMAKER1969]

My mom has it, she's in the hosp right now on life support because she choked on her food and was with out air for sometime that now the top part of her brain is gone. My brother wants to keep her on life support. I want her suffering to stop. This is where I am now. Its been 12 Yrs from when we found out about huntingtons.

[Blackduck46]

@mbmvcvdpzp I hope she is right. As a parent i was told without the predictive test all parents could do is guess. But I was correct with the outcome on all occasions so I guess a parents gut feel is fairly sound.

You just know. So many small things make up the bigger picture. The test is necessary so as not to pass this horrible gene on for others to suffer. It affects not only the sufferer but the extended family and friends.Hard to face the test but the best way to go. All the best.

[mbmvcvdpzp]

@Blackduck46 mum says i havent got it

[Blackduck46]

@americanpride296 I can fully understand your anger and I guess we have all been there.

I buried my beautiful wife of 30 years, (I had known her since she was three), her Father, and will be soon burying our 3 children. I no longer question why . I no longer get angry. A heavy heart only poisons the host andI need every day I can squeeze from life to help my children through. I learnt that forgiveness without boundaries is the answer to survive, especially for those ignorant. My condolences.

[Blackduck46]

@mbmvcvdpzp It would be rare for both Parents to suffer from HD. You are at a 50-50 chance of inheriting the genes. Given that you have as much chance of being free of it as you have of getting it.

And it doesn't jump generations, you are either carrying it or you are not.

My 4 children were tested and 3 were positive, a bad result. The good that comes from testing is you

can then plan to eradicate it from your family chain. We, as a family, are not passing it on for others to suffer.

[americanpride296]

@Blackduck46 yesterday july 15 @ 8:33 pm i lost my big sister to this !!!!!!! disease that keeps haunting my family . I have lost my father grandfather two aunts and 4 cousins right now i have no words of wisdom or strength to share with anyone I AM ANGRY @ life right now and i am wondering WHY why why

[Blackduck46]

braveharty, I too was asked by my family "why always write sad poetry" So I wrote a nice humerous one. Result, my extended family thought "all was well" and support dropped off. Life is full on here but my heart will not have me any place else. The Services tell me my daughter is getting the best care possible being home with me and I would not have it any onther way. I feel for all the sufferers and their Carers/Family alike. I trust one day they will find a cure. Best wishes to all.

[braveharty]

@Blackduck46 hey there ;-) , you sure been through the wringer eh pal, hope your strength never leaves you.

i too have been through 3 generations off hd, me and my siblings being the third and now nearly facing a fourth, just you hang in there, and am feeling the sad poetry some amazing writings/poems/songs come out of the darkest moments, my sisters say " jamie can you not bloody write some happy poems for a change" lol.

god bless keep strong.....

[mbmvcvdpzp]

Is it ok if i Favorited this? :)