Jamie shares an idea and plan, inspired by his brother, to help ALS patients and others through an inventive website for sharing and tracking patient data.
ATTN TED MED: this needs to be TAGGED APPROPRIATELY! How are people supposed to find this without appropriate tags? Tag medicine. ALS. New medical treatments. Come on people!
Thanks for continuing the search for all of us in the ALS section of PLM , I would have liked to have met your brother , screen name is dray in PLM , hope is all we have , but I know when a cure is found I won't be here but maybe being a part of PLM will help future patients have a chance
Absolutely amazing. Need to learn more about it. The concept is amazing and gave me pressure of thought. I would like to adapt this to recurrent respiratory papillomatosis and will explore how to do it.
HI Jamie. I think your presentation was amazing, I do think they should have given you more time so you wern't so rushed. I am so sorry for your loss. Ty for creating Patientslikeme for us. I am new to this site, but I am already so excited about your statistical data that we can have for our selves and then shar
The power of this website is astonishing. Soon after my diagnosis of Parkinson's Disease a year and a half ago, I happened on PLM - and it was the most helpful tool I had in trying to understand the disease and what was happening to me. I am so grateful to its creator, the administrators and to the thousands of people who share their lives on this site.
ATTN TED MED: this needs to be TAGGED APPROPRIATELY! How are people supposed to find this without appropriate tags? Tag medicine. ALS. New medical treatments. Come on people!
sweetlikedaim 1 month ago
This is fantastic. Need to get this out to all med students. EVERYWHERE! ESPECIALLY ALL GPs.
sweetlikedaim 1 month ago
0 dislikes whop it stays that way ;) brilliant website keep it up!
pchambos 4 months ago
Thanks for continuing the search for all of us in the ALS section of PLM , I would have liked to have met your brother , screen name is dray in PLM , hope is all we have , but I know when a cure is found I won't be here but maybe being a part of PLM will help future patients have a chance
ALSDave 1 year ago
Absolutely amazing. Need to learn more about it. The concept is amazing and gave me pressure of thought. I would like to adapt this to recurrent respiratory papillomatosis and will explore how to do it.
FarrelBuch 1 year ago
We need more people like you on earth. You epitomise the ability to retake the power we all have and think we have lost. God bless you
baiame 2 years ago 2
HI Jamie. I think your presentation was amazing, I do think they should have given you more time so you wern't so rushed. I am so sorry for your loss. Ty for creating Patientslikeme for us. I am new to this site, but I am already so excited about your statistical data that we can have for our selves and then shar
Kellyjowill 2 years ago
The power of this website is astonishing. Soon after my diagnosis of Parkinson's Disease a year and a half ago, I happened on PLM - and it was the most helpful tool I had in trying to understand the disease and what was happening to me. I am so grateful to its creator, the administrators and to the thousands of people who share their lives on this site.
saraleerosen 2 years ago
I agree...put the subject back in the title
csqw 2 years ago
i second that!! put back the subject....at least let us know what we're getting into!
workaholic888 2 years ago