This is great, Can you make one for Lambert-Eaton Myasthenic Syndrome (LEMS) Its even rarer than MG, less than 1 in a million my DOC at the MAYO tells me! We need a video like this!
Cute little video with puppets & clever repartee! Much good info on MG, thanks! MODERATE execise seems to helpme a lot....as does MYTELASE, an older drug that's VERY expensive, but lasts a long time, with fewer side effects. Too few peopl use it, and maybe it cud Vanish (!) So, tel others about it, & mayb it won't vanish! Mestinion CHLORIDE also good, (no bromide = no mucus)...but it disappeared years ago. Please bring back! Thanks 4 sweet puppets & good info!
@myasthenicontwitter Thanks for the info! I've had MG since I was 4, (unusual, but tru!) Will this vaccine help people with MG already, or only prevent it in people who don't have it? Thanks for the links! (Please also ask OLDER doctors about a great drug called MYTELASE. It's an older drug & very expensive...but lasts a long time, & makes me very strong. But 2 few peopl know of it, and it may become extinct (!!!!!) If mor peopl used it, it wud be mor available. Great medicine!
Dr. Stephane Huberty, a scientist in Belgium is developing a vaccine for MG. It is ready for phase 1 clinical trials. The BBC and the Wall Street Journal have both recently interviewed Dr. Huberty. If you are interested in it, follow @myasthenic on Twitter or Google Curavac. You can find the links to the articles and interviews on the website.
This is great, Can you make one for Lambert-Eaton Myasthenic Syndrome (LEMS) Its even rarer than MG, less than 1 in a million my DOC at the MAYO tells me! We need a video like this!
sperrone26 15 hours ago
Cute and educational. I like it
Spoiled8919 1 month ago
I love this video...so funny!
hcereola1 2 months ago
Great job on the video!
TheValerievalentina 7 months ago
i like this it tells about what i have good job
yinyang100100 1 year ago
Hilarious, entertaining, and a good learning tool :)
cupcakesncream16 1 year ago
this is great!! are there more videos like this??
marywhitedeer 1 year ago
Cute little video with puppets & clever repartee! Much good info on MG, thanks! MODERATE execise seems to helpme a lot....as does MYTELASE, an older drug that's VERY expensive, but lasts a long time, with fewer side effects. Too few peopl use it, and maybe it cud Vanish (!) So, tel others about it, & mayb it won't vanish! Mestinion CHLORIDE also good, (no bromide = no mucus)...but it disappeared years ago. Please bring back! Thanks 4 sweet puppets & good info!
UTAOUB 1 year ago
@myasthenicontwitter Thanks for the info! I've had MG since I was 4, (unusual, but tru!) Will this vaccine help people with MG already, or only prevent it in people who don't have it? Thanks for the links! (Please also ask OLDER doctors about a great drug called MYTELASE. It's an older drug & very expensive...but lasts a long time, & makes me very strong. But 2 few peopl know of it, and it may become extinct (!!!!!) If mor peopl used it, it wud be mor available. Great medicine!
UTAOUB 1 year ago
Dr. Stephane Huberty, a scientist in Belgium is developing a vaccine for MG. It is ready for phase 1 clinical trials. The BBC and the Wall Street Journal have both recently interviewed Dr. Huberty. If you are interested in it, follow @myasthenic on Twitter or Google Curavac. You can find the links to the articles and interviews on the website.
myasthenicontwitter 1 year ago