Ehlers-Danlos Syndrome and the National Foundation

i remember the fist time i didn't feel pain
it was after a shot of morphine before knee
surgery. the surgeon didn't know what to think of the cartilage. he sent it to be tested for cancer. I'm 52 , crippled but i have hope. thanks you tube. everything fits
now. you see i didn't know what was wrong until i started researching.

Hugs to you, YoMags! It's nice see this. Technology makes me feel not so alone anymore! I have EDS-hypermobility type, or as my PT calls it Gumby Syndrome. Getting the word out about the kooky and painful group of conditions is great!

Hi Mags!! It's Julie from the EDNF group. (Sama's partner). It's great to see you on Youtube, and see that you are advocating as well! You're great, and hope to see ya soon.

I hear you. I have this and it totally turns your world upsidedown. It makes school difficult and it can be very painful. Thanks for support!