Huntington's Disease by Sue Wright

An introduction to the basics of Huntington's Disease designed to create awareness and secure support for research and families living with HD.

Category:

People & Blogs

Tags:

• Huntington's
• Disease
• HD
• Huntingtons
• Introduction
• Awareness
• Support
• Research
• suetwin2

[saigondaisy]

Thank sue . Great video . Its a little upseting as i get the rusults from my test on monday . I hope and pray thats it good news . If its not i have good family and friends round me to keep me safe and well looked after

[suetwin2]

@saigondaisy Thank you for watching and commenting. I hope and pray you'll get good news on Monday but, if you don't, remember you've also got an online extended family who understand and will do all they can to support you. Love & hugs xoxox

[NeverShoutAshley2011]

They have given me permission to get tested as long as i have a reason and parental consent and my mom gave me permission to get tested, Its my choice so she let me make my own decison, im very sorry about your husband, its so hard, i miss my dad with everything. my brother doesnt want to know if he has the disease but i cant have kids if i do,,,they dont need the disease.

[suetwin2]

Thank you - it is hard :o( It sounds like you have a very wise head on relatively young shoulders :o) My husband and I opted not to have children but since the discovery of the gene, there are options such as PGD to allow people to have HD free babies. I know there's more than just their HD status to consider as HD is a hard road to travel for everyone. Look me up on Facebook if you'd like as there's good support there and I could introduce to others who've tested. xxx

[NeverShoutAshley2011]

Could you search me i couldnt find you.

just search

Ashley Egan and youll find me im holding my fathers flag in my profile picture

[suetwin2]

Found you (I hope) and sent friend request! :o) xxx

[momskippers]

Could you somehow forward this to Oprah. I have been trying to get on her show to raise awareness and $ for HD research. I lost my dad, my brother and sister have HD and 2 nieces tested positive.

[qsefthuko11]

Thiss I s a verrry caring veido you have helped me very much because i have to do a project on this and ur infomation help me! and its a very sad depressing disease. thank yoou Kayla :) and i am very sorry about your husban. i cant wait till i get older i will help find the cure for it if it hasnt been found.

[1204katie]

@suetwin2

I hope you get on ok, I got mine a few years ago now, not good news but my theory is i aint got it today, it works for me xx

[silk14u]

@NeverShoutAshley2011 Dont give up on having children, My first born is an IVF/PGD baby and she is close to 3 years old. The only thing you can loose is money but the gain is amazing! Its Possible!

[wilsonhighlander]

watch the first documentary about huntington disease in portuguese made in brazil, we're looking for channels to show it.

see on my profille, the " convivendo com a doença de huntington" video

[swhitt21]

In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.

[TheBadbowman]

Lewisam37 I'm sorry man!! I swear i hope every1 in the world with HD gets cured. Again I'm sorry man!!!

[reyrey301]

angie will be missed

[BeanDentist]

thank u for this video

[LewisAM37]

Huntingdon's Disease sucks, my dad has it and he is nothing like he used to be, it's a shame i didn't know him that well before because i was too young